Support Loren's Fight Against Friedreich’s Ataxia

After years of questions, doctor appointments, etc., we finally received a diagnosis for our son Loren. He is just 16 and was diagnosed with Friedreich’s Ataxia, a progressive neurological disorder.

Just as of last year, there is a medication available to slow progression, but not stop it. The disease is very rare, affecting 5,000 people in the U.S., and specialists are hard to come by. With divine intervention, we were able to get an appointment with the nearest specialist on September 17th.

We will have to travel back and forth to Iowa City for appointments with a team of specialists. We have piles of medical bills, and more to come.

We will need special equipment for Loren and the ability to equip our house with specialty lighting, a handicap accessible bathroom, ramps, and possibly a stair lift.

I will be fundraising like crazy for curefa.org but that goes to the foundation, not directly to the patient.

If you feel compelled to help, please do. If you are unable to help financially, you may be able to help out by participating in a future fundraising opportunity, or by simply sharing to raise awareness.

Please check out curefa.org, Ataxia Connection on Facebook, and The Ataxian on YouTube to educate yourself on this disease and the importance of funding for research.