Support Malia Hassenbein in her fight for a cure.
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It has now been over 6 years since Malia Hassenbein’s life threatening symptoms began. The seriousness of Maila’s condition became more obvious to family and friends when she was first admitted to Los Robles Hospital, Christmas (2013). She spent every holiday of 2014 in Children’s Hospital Los Angeles (CHLA). Her last stay was 6 weeks straight. She underwent a bronchoscopy and was ultimately put into a medically induced Coma. The family was told she would not live, but miraculously she did. Since that time, Malia and her family have spent much of their physical and emotional lives, focused on seeking a diagnosis and cure for Malia’s condition.
They have tried everything, including going to the Mayo Clinic in Minnesota, working with the National Institute of Health and UCLA Medical Center, but still have not been able to get Malia’s condition diagnosed. The doctors have assumed an autoimmune disorder, but have not been able to determine the cause and road map to a viable treatment.
Her on-going symptoms include: Loss of balance; Loss of the ability to walk without assistance; Constant pain in her legs due to spacisity; Inflammation of the brain and Central Nervous System, not to mention her inability to have a normal life as a 21 year old. She struggles with memory issues and anxiety. She went from being a student athlete to barely being able to attend school at Moorpark College.
Malia has suffered through many costly medical procedures, including spinal taps, MRI’s, CAT scans, blood tests, Hyperbaric Chamber Treatments, Intravenous immunoglobulin treatments (IVig), not to mention every type of alternative treatment over the last 6 years. This has taken a toll on her mental condition and led to depression.
Through all the testing, many illnesses have been ruled out, but the doctors are still unable to give a conclusive diagnosis. Because there is no conclusive diagnosis, she is ineligible for clinical trials or possible treatments. She has lesions on her brain and spine, which has made her “prednisone dependent” and she sees a trainer regularly to keep her strong and mobile.
Malia's parents Tom and Mara Hassenbein have been working with Cedars Sinai since early December, with a hope of a diagnosis and treatment options. They are hopeful that the help she needs is around the corner.
Our goal in setting up this “Gofundme” account, on Malia’s behalf, is designed to offer to this family as much support as we can, in order to assist the next phase of Malia’s journey and ultimate recovery. While the family has been incredibly grateful for the support they have received thus far, their most urgent need is financial support.
We are reaching out for your financial support. Your generous financial contributions will aid in supporting Malia and the Hassenbein family on their continued search for a diagnosis, treatment and ultimately a cure.
Please join us now, as we raise this family up and into the cure for Malia’s illness.
Thank you.
They have tried everything, including going to the Mayo Clinic in Minnesota, working with the National Institute of Health and UCLA Medical Center, but still have not been able to get Malia’s condition diagnosed. The doctors have assumed an autoimmune disorder, but have not been able to determine the cause and road map to a viable treatment.
Her on-going symptoms include: Loss of balance; Loss of the ability to walk without assistance; Constant pain in her legs due to spacisity; Inflammation of the brain and Central Nervous System, not to mention her inability to have a normal life as a 21 year old. She struggles with memory issues and anxiety. She went from being a student athlete to barely being able to attend school at Moorpark College.
Malia has suffered through many costly medical procedures, including spinal taps, MRI’s, CAT scans, blood tests, Hyperbaric Chamber Treatments, Intravenous immunoglobulin treatments (IVig), not to mention every type of alternative treatment over the last 6 years. This has taken a toll on her mental condition and led to depression.
Through all the testing, many illnesses have been ruled out, but the doctors are still unable to give a conclusive diagnosis. Because there is no conclusive diagnosis, she is ineligible for clinical trials or possible treatments. She has lesions on her brain and spine, which has made her “prednisone dependent” and she sees a trainer regularly to keep her strong and mobile.
Malia's parents Tom and Mara Hassenbein have been working with Cedars Sinai since early December, with a hope of a diagnosis and treatment options. They are hopeful that the help she needs is around the corner.
Our goal in setting up this “Gofundme” account, on Malia’s behalf, is designed to offer to this family as much support as we can, in order to assist the next phase of Malia’s journey and ultimate recovery. While the family has been incredibly grateful for the support they have received thus far, their most urgent need is financial support.
We are reaching out for your financial support. Your generous financial contributions will aid in supporting Malia and the Hassenbein family on their continued search for a diagnosis, treatment and ultimately a cure.
Please join us now, as we raise this family up and into the cure for Malia’s illness.
Thank you.
Organizer and beneficiary
Joe Cullen
Organizer
Moorpark, CA
Mara Hassenbein
Beneficiary