Support Marissa and Tyler's Journey for Micah

We are setting up a go fund me for Marissa and Tyler! They have received so much information regarding Micah and the rest of Marissa’s pregnancy. We are praying hard for them and want to do anything to take any stress that might be on them during this time. We are setting this up to help with funds following the fetal surgery as Marissa will be out of work from surgery day till after maternity leave. The disability she will receive for maternity is enough to be grateful for but in the economy we live in, any extra can help. This will go to bills, food, gas to go back and forth to doctor visits , extensive specialized care once Micah is here and whatever else they may need.

Please donate if you feel called to but if not please keep them three in your prayers and share!

A little about Micah’s story from Marissa’s Facebook:

Diagnosis day for Micah was unfortunately not what we were hoping for.

Instead of a meningocele at s2 as we were hoping for, he has myelomeningocel at L4 and Chari Malformation.

Basically, his spinal cord is damaged in the lower back and his spinal cord is in his cyst pulling down his brain. This means he could develop hydrocephalus on the brain and need a brain shunt to pull excess spinal fluid off.

We are eligible for fetal surgery on November 12th. This is an intense surgery where he’s technically “born”, they repair his spine and put him back until birth. (Technically his second birthday). This surgery can prevent hydrocephalus by 60%, and reverse the Chari Malformation.

Lifelong, he could be facing a level of limb weakness and bladder/bowel issues. These are things we won’t know the extent until he’s born.

Good news from today:

1. We are candidates for this life changing surgery as long as our tests come back normal today.

2. He has full movement we’re just not sure how strong he is.

3. No clubbed feet

4. No current hydrocephalus

Micah is a miracle no matter what happens and my main concern is that he gets here. Whatever that looks like we will fight for him and get him the best care. He is expected to walk. He is expected to be cognitive with some possible delays.

This surgery means I will be out of work on bedrest until he is born and of course normal maternity leave after that. So pray for Tyler and that my mental state of being cooped up doesn’t scare him away . I will hopefully learn a new hobby in this time.

I still feel such an incredible peace that we now have a plan for our little boy and that we’re getting closer to meeting him. I’m extremely grateful for all those praying for our child by name and we are continuing to believe in miracles and Gods grace in his diagnosis.