Support Marissa's Fight Against Bulbar ALS

Marissa Morentin was diagnosed with an aggressive form of Bulbar ALS on September 25th, 2023 at the age of 31. Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, is a fatal neurological disease that affects nerve cells in the brain and spinal cord. Most people with Bulbar ALS have a lifetime expectancy of 2 years, and care becomes very costly towards the later stages. Unfortunately, she is now in the later stages of this unforgiving disease.

Those of you who know Marissa know that she has a razor-sharp wit, is passionate about social justice, and loves her family, especially her four-legged children.

In the past year, she has lost the ability to walk, use her hands, or talk. She is unable to eat or drink without assistance. Things like going to the bathroom, taking a sip of water, or even liking a friend's text, have become impossible to do on her own, and are quite difficult even with assistance. Having the resources to pay for professional services would significantly improve her quality of life and allow her to better communicate with family and friends.

While there are no known cures for ALS, there has been significant growth in research and treatments over the last few years. There are now over 60 confirmed spontaneous ALS reversals, including some who were taking supplements or alternative treatment programs not covered by insurance. Having the hope to beat ALS has never been more possible than it is now.

ALS is known as “the bankruptcy disease”. To fight it, Marissa and her parents will need support for in-home medical and personal care, equipment and accessibility renovations to their home, and medical expenses and alternative therapies not covered by insurance.

To support them in this fight, we are asking for your support by donating to help Marissa and her family alleviate the financial burdens of fighting ALS.