Support Pasley's and Brooke's Fight Against CMT2A

Hi My Name is Rachel and I'm starting this go fund me to benefit the Perritt Family to help with any medical/ travel expenses they may have. Their Little girl Pasley, who is a young GISD student, was recently Diagnosed with CMT. Since finding out their daughter has this diagnosis they also found out it was genetic, and Brooke, mother of Pasley also has it. This Family is in need of a new vehicle that can accommodate their entire family as they go to and from all these dr. visits for the both of them , as well as, medical shoes/ braces for Pasley!

"CMT Is also known as Charcot-Marie-Tooth is a Progressive muscle weakness typically becomes noticeable in adolescence or early adulthood, but the onset of disease can occur at any age. Because longer nerves are affected first, symptoms usually begin in the feet and lower legs and then can affect the fingers, hands, and arms. Patients with CMT2A (which is the type Pasley has) usually begin to experience progressive weakness in childhood and most become wheelchair dependent.

It has affected her daily activities. It’s hard for her to run and keep up with people, she has sudden falls because her feet give out on her.

We had to convert the bathtub into a shower because it was getting hard for her to lift her leg and step over.. she has a shower chair to sit down in there her hands hurting when having to write to much in school. We are having to take the trampoline down because she keeps hurting herself on it. Anytime she jumps it sends sharp pains up her legs.

EVERYTIME she walks her feet have a sharp pain in the middle of them. One foot she walks on her tippy toes and the other foot she’s completely flat foot.. on top of CMT2a she has foot drop. she will be getting AFO (braces) for her legs to help stabilize her until they figure out if they are going to perform surgery and when…

The only dr we could get her in fast enough was Dallas. So we found out about her diagnosis in November 2023. And have had back to back appointments.

We have found out it’s a genetic disease. So they tested me for it and I have the condition as well. So on top of her meds and daily needs and help I have my doctor appointments meds my hurting in my hips, and hands, but still strive to make sure she makes it.

We have a wheelchair for her for walks in case they will be too long and she will start to hurt but if we have the kids with us our vehicle is too small. So we will be looking into getting a new vehicle to accommodate and fit everyone, plus room for her wheelchair. Enough trunk space.

Thankfully her siblings tested negative for it." - Brooke Mother of Pasley

I've attached some pictures below! Anything helps let's Bless this Family and sweet Pasley and Brooke!

Thank Yall!