
Support Ransom continue his battle with cancer
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Thank you everyone. For your continued support and help and thoughts and well wishes during this hard time!!
5/28 UPDATE 8: sorry I haven't posted an update, it has been busy and kinda hectic. We arrived in Seattle, got sent up here 5/13, instead of coming later cause it became emergent. They've started Ransom on some chemo, hoping it'll stop the leukemia from spreading and relieve some of his symptoms. The leukemia is in 85% of his bone marrow, and in his bones. He's been a little better. He still has to have transfusions a lot. He has an infection in his mouth, and in his body some. He's on antibiotics for. His cells for the trial should be ready by 6/14. And they'll be able to transfuse those into him. And we'll have to be here for a month after that, so he can be monitored. So hopefully the middle of July, we will be able to come home. We've also decided after this treatment, to also do a bone marrow transplant. He'll have to be in remission for a month, then we can. But that way it's more done to stop it from coming back and whatever cancer cells are left over after this treatment, we can replace. Because this treatment, won't take everything and isn't a cure. Some cells will be left behind. Hopefully a transplant will help and fix it. So it won't relapse in a couple months like before.
5/12 UPDATE 7: We haven't been able to go home. We got out of the hospital for 5 days, Ransom had to be re admitted. We are going to Seattle Saturday night about 730 we will be transported to Seattle children's hospital. And we will be there for about 2 months as of right now. Monday morning he has a bone marrow biopsy scheduled to be done up there. Should know more about the treatment and all of that when we get up there, Sunday or Monday.
5/2 UPDATE 6: Ransoms results came back finally. His bone marrow is cd22+. So he is eligible for the clinical trial. All of the paperwork and his medical documents were submitted to Seattle today. They have unhooked him from his IV machine, so he's not getting fluids. So they can see about him drinking and getting them on his own. To more prepare him, to transition to be able to go home before we go to Seattle. That is still our main goal. So he can see family before we have to go further away. For more unknown time, and so he can see his dog.
5/01 UPDATE 5: Should hear about Seattle later today. His main oncologist is reaching out to them to find out what the plan is. They are also hopeful they can get us home for at least a day or so before we have to go to Seattle. Today, they are going to switch Ransom from the button to 10mg oxycodone as needed and see how that goes. Cause yesterday he only pushed his button like 3x by 7 pm. And none so far today. Which for him, is amazing. And means the oral medication has been working and they've got the doses correct. His pain is now under control for the most part. His foot swelling, looks like it has gone down some. But it is still swollen and still painful mainly cause of the swelling. He can't really put it on the floor and put pressure on it to stand up. So we've been working on elevating it. Which has helped that's why it's not as swollen now. Hopefully by the end of today, I will have more good news and know the plan about Seattle. I'm hoping the end of this week maybe, we will get to go home maybe for the weekend to see our family. But idk if it will be that soon lol. Thank you everyone, for keeping Ransom and his family in your thoughts
4/29 UPDATE 4: They lowered Ransoms PCA last night(IV pain medication) and he did good. Had a good night, and slept good also. Tonight, they will be taking him off the continuous PSA, and he'll just have the button. And we'll then see how tonight goes. Then tomorrow night they'll take him off the button. And he'll just be on his oral pain medication. Night time is the worst for him. He usually has more pain at night. So while upping his oral pain medication, at night time it'll be a little more. By time they take him completely off the PSA, his oral meds should be completely in him and have had a few days to take complete effect. And we'll see how he does back on just the oral medication. His foot is still swollen and painful. But, it isn't broken or fractured. And no blood clot. It's from all the fluids and him being in so much pain he can't move much. So we've been elevating it some when he'll let me help him do so. Our main goal we are trying to work towards, is getting out of the hospital. And trying to hopefully be able to go home before we have to go to Seattle. So he can see his ESA Zaria, and his brother and grandparents. And he's doing really well with accomplishing some things that need to be done in order for that to happen. He's getting a little bit more rest. And he's been eating more also. Monday, we should know the final results and know for sure hopefully, about him being able to do the clinical trial in Seattle. Ransom gets to see his dad and step mom this coming week. Unfortunately he can't see his siblings, they can't visit on his floor. So I'm going to stay at the room I reserved with them during the day so I can also spend time with my youngest. And one of the nights I'm gonna let Ransom have his dad for the entire night and stay at the room with the kids and his step mom. Hopefully this will at least make him a little happy. Nothing will make him as happy as seeing his dog lol but it's a small something to him at least lol
4/28 UPDATE 3: Good News for once!! His main doctor came in today. So I called his dad and put him on speaker phone so he could hear whatever news was about to come. While I had an anxiety attack. They got half the results back that they sent off to Seattle. The cd22 marker that they need for the clinical trial. His blood was positive for it. So, she's very hopeful that his bone marrow will also be positive for it. So she's starting the financial paperwork for the insurance. And we discussed if the trial doesn't workout for whatever. The bone marrow transplant. We're also going to be starting the process for that. Because it is such a long process. If we also start that, then we'll have it all done and ready just in case it comes to that. Hopefully by the end of today, or Monday we should have the rest of the results. And know more about Seattle. His foot and ankle have been hurting him. And swollen. They think it could be from all the fluids. But they're not 100% sure. With the pain he has from it. So they wanna try and get an x-ray. Early next week. To see if they're missing anything or if it's possibly fractured. Hopefully not and it's just the fluids. They're going to try and ween him down on the PCA medication. And get him back on just his own medication. So they can see if they can get him at a good place. So he can be out of the hospital for a little and possibly go home for a few, before we have to go to Seattle. And night just have to go straight from here to Seattle. So he can see his dog and I can see my youngest lol. For once this entire stay, we have a little bit of hope.
4/27 UPDATE 2: We're still waiting on test results. The sample they originally sent off to Seattle, wasn't viable. So they are doing another biopsy this afternoon. So they can send it off to Seattle again. Hopefully we get the results by Monday or so. He's been in so much pain. But has some good days. They just started him on some oral chemo, 2 nights ago. So it can hopefully help with his pain. And hopefully at least stop it from spreading. Chemo didn't work last time when he was first diagnosed. But it did stop it from spreading and pretty much just kept it the same. So that's what we're hoping it'll do this time. So far today, he seems a little better. Pain wise. He just misses his emotional support dog.
4/25 UPDATE 1: Waiting on results. No date of when we might be able to possibly go home. Or if we're able to go to Seattle for the clinical trial. No idea how long that stay will be if we do get to go there. He's been in a lot of pain
My son Ransom is 14 years old. He's been battling cancers since he was 11. He has acute lymphoblastic leukemia. Chemo didn't work. So he did car t therapy. We thought it worked. He was in remission doing amazing. For 2 months. On 4/17 we were rushed up to doernbecher children's hospital. We then found out his leukemia was back. Our only real option for him, is a clinical trial in Seattle. We're currently waiting to hear back from. I'm not sure exactly how much his insurance will pay for. I'm a single mom. My 11yr old son, is staying with my parents while I'm with Ransom. I just went back to work, a couple weeks before having to come back to Portland. So, I lost my income again. I don't get help supporting them. And need help with things they insurance doesn't cover. For Ransom, and for myself. While in the hospital. And possibly extra, so I can send some money to my parents to help them while they are caring for my youngest. And just anything else to help put a smile on Ransom's face also. He deserves so much more. The clinical trial, is our last hope and best shot right now.
Organizer
Kassandra Worrell
Organizer
Myrtle Point, OR