Support the Grimes Family
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Let me tell you about my friend, Jeremy. Jeremy is a loving, dedicated husband, father to two smart and fearless girls, and a beloved brother and son. He is funny, compassionate, and a friend to everyone he meets. At just 38 years old, he also is living with a rare and painful disease that requires a liver transplant.
As some of you may know, Jeremy has Primary Sclerosing Cholangitis (or PSC)—a rare, genetic liver disease that is terminal without a liver transplant. There’s no medication or treatment or cure for the disease other than liver transplant. And because Jeremy has both PSC and Ulcerative Colitis, he also has an increased risk of several cancers including colon cancer and bile duct cancer.
Jeremy has had three hospitalizations due to repeat Cholangitis in the past three months, a common infection in PSC patients. The disease causes jaundice, intense and painful itching, nausea, vomiting, fever and chills and several other symptoms that are difficult to manage, even with medication.
A living donor liver transplant is the best chance Jeremy has to live. The sooner his transplant happens, the greatest his chances are for recovery.
There is reason to be hopeful. Many, many people registered to be evaluated to be a living donor for Jeremy. We found out this week that only 1 even has the potential to be a match and he is having his own evaluation at the end of September. We will find out early October if he is a match. Jeremy is 6’7" tall, which means he needs a larger portion of the donor’s liver than most people. And while many of the donors were a match in other ways like blood type and in good health, they didn’t match due to their height and size.
As you can imagine, even with health insurance, Jeremy's possible transplant will be very expensive, and he and is family will incur tens of thousands of dollars in medical bills, and lost wages (for Jeremy, and his wife, Christie), as well as donor expenses such as medical care, lost wages, airfare, and accommodations.
This is where you can help. Please consider donating any amount you can to help Jeremy and Christie defray the costs of his transplant. They are under so much stress and pressure right now, waiting to see if their possible donor is a good match, we can help them by easing their financial worries. Any amount you can give is helpful. Please also consider sharing this post. It only takes a moment, and every share increases the likelihood of meeting our fundraising goal. All funds raised will go directly to Jeremy and Christie to pay for medical and living expenses for him and his donor.
As some of you may know, Jeremy has Primary Sclerosing Cholangitis (or PSC)—a rare, genetic liver disease that is terminal without a liver transplant. There’s no medication or treatment or cure for the disease other than liver transplant. And because Jeremy has both PSC and Ulcerative Colitis, he also has an increased risk of several cancers including colon cancer and bile duct cancer.
Jeremy has had three hospitalizations due to repeat Cholangitis in the past three months, a common infection in PSC patients. The disease causes jaundice, intense and painful itching, nausea, vomiting, fever and chills and several other symptoms that are difficult to manage, even with medication.
A living donor liver transplant is the best chance Jeremy has to live. The sooner his transplant happens, the greatest his chances are for recovery.
There is reason to be hopeful. Many, many people registered to be evaluated to be a living donor for Jeremy. We found out this week that only 1 even has the potential to be a match and he is having his own evaluation at the end of September. We will find out early October if he is a match. Jeremy is 6’7" tall, which means he needs a larger portion of the donor’s liver than most people. And while many of the donors were a match in other ways like blood type and in good health, they didn’t match due to their height and size.
As you can imagine, even with health insurance, Jeremy's possible transplant will be very expensive, and he and is family will incur tens of thousands of dollars in medical bills, and lost wages (for Jeremy, and his wife, Christie), as well as donor expenses such as medical care, lost wages, airfare, and accommodations.
This is where you can help. Please consider donating any amount you can to help Jeremy and Christie defray the costs of his transplant. They are under so much stress and pressure right now, waiting to see if their possible donor is a good match, we can help them by easing their financial worries. Any amount you can give is helpful. Please also consider sharing this post. It only takes a moment, and every share increases the likelihood of meeting our fundraising goal. All funds raised will go directly to Jeremy and Christie to pay for medical and living expenses for him and his donor.
Organizer and beneficiary
Jenni Pompi
Organizer
Greenbelt, MD
Christie McCready
Beneficiary