Support the Halpins' Journey with Tay-Sachs
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Hello and thank you for checking out Katey and Robert Halpin's GoFundMe page. As many of you know, Katey and Robert began their dream journey to start a family 3 years ago and faced several challenges. But despite these challenges, they were dedicated and so full of love for their future child that they spent 2 years trying and, with the help of fertility specialists, were blessed with the miracle of Calvin on August 26, 2023.
Unfortunately, Calvin was recently diagnosed with a rare genetic disorder called Tay-Sachs disease.
Quoted from the Mayo Clinic, "In the most common and severe form of Tay-Sachs disease, signs and symptoms start to show up at about 3 to 6 months of age. As the disease progresses, development slows and muscles begin to weaken. Over time, this leads to seizures, vision and hearing loss, paralysis, and other major issues. Children with this form of Tay-Sachs disease typically live only a few years." "There is no cure for Tay-Sachs disease, and no treatments are currently proved to slow progression of the disease. Some treatments can help in managing symptoms and preventing complications. The goal of treatment is support and comfort."
If you have questions or want more information about Tay-Sachs, the Halpins encourage you to check out the National Tay-Sachs & Allied Diseases Association website. **Please be mindful and aware that this information may be very triggering**
To say this news has devastated their lives is an understatement. As a result, Katey has chosen to go on FMLA as she and Robert begin the process of supportive treatment for Calvin at Children's Primary Hospital.
As friends, family, and loved ones, Katey and Robert need our love and support more than ever. I have created this GoFundMe for them as one way to show your support. These funds will go directly to Katey and Robert to support Calvin's medical and basic needs as well as Katey and Robert's basic needs. We hope to lift any small burdens or stress so they can focus on what matters.
If you cannot support monetarily or are looking for other ways to support Katey, Robert, and Calvin, here is a list of other ways you can show your love and support:
- A letter or card with words of love, support, and sympathy
- Provide a meal - cook, order, or send a gift card
- Call or spend quality time with them
- Offer to take care of tasks or errands
Thank you for showing your love and support to Katey, Robert, and Calvin during this difficult time. <3
Organizer and beneficiary
Rebecca Ryan
Organizer
West Valley City, UT
Katey Halpin
Beneficiary