Support the Lassiter family with this rare disease
Donation protected
I am making this account for one of my very best friends. Ashley has always been there for anyone that has ever needed it and not one to ask for help. Hence why I am doing this because she won't ask. I hate to see her going through this alone. We are trying to get the funds to help with any medical bills and funeral cost for her mother that is battling a very rare disease. . Please anyone that is willing to help it will be greatly appreciated. I had Ashley write out everything they have went through and still going through..
My mom, Tammy, is 59 years old and has recently been diagnosed with Progressive Supranuclear Palsy. For almost two years we have been trying to find out what was wrong with her. We would notice things like her tripping on nothing and noticing she wasn’t as sharp as she used to be. Her coworkers had even reached out to me when this first started with their concerns. We would all ask her if she was okay and because my mom has always been tough, her response was always “I’m fine.” I had to stage a health intervention and was finally able to convince her to go to the doctor. I went with her to make sure she was being honest with them about her issues. Shortly after our primary care doctor told us they believed she had Parkinson’s. We felt relief with the news. We knew what this was and we knew what to expect. We were then referred to a neurologist and she was being treated for it since. Medicines weren’t helping and scans were causing more questions than answers. After all this they said she had Parkinsonism, because it wasn’t Parkinson’s exactly, but it was similar. Her final diagnosis is really rare, only affecting 5 in 100,000 people. As soon as we got her official diagnosis, we were told our primary care doctor and neurologist both feel hospice needs to be brought in. We barely had time to wrap our heads around her diagnosis and to know that hospice is needed was even more of an unexpected blow. We knew whatever she had, her condition is worsening quickly. We just didn’t think we were at the end. In just the last two months she has gone from walking to needing to be in a wheelchair. She is no longer able to dress, bathe or feed herself. My mom has always been an independent woman and always put others before herself. We are needing to prepare for any future medical costs and final expenses. Mom has no life insurance policy. She lost the one she had through her job when she had to quit due to her disability. My father has been her main caregiver and he is 80 years old. He also suffers from Early Onset Alzheimer’s. He is doing the best he can, but this is wearing on him. We always assumed with their age difference, dad would be the one to go first. He was not prepared to be her caregiver. They are also raising two of their grandchildren who are 11 and 13. I have tried to get my mom as much assistance as I can. Unfortunately she only has a limited medical plan. She didn’t qualify for Medicaid and Medicare won’t kick in until she has been disabled for 2 full years which won’t be until October 2021. Due to her condition we can’t get any type of life insurance now. I want to help take this financial burden off of my dad and let him know this is one less thing we have to worry about.
My mom, Tammy, is 59 years old and has recently been diagnosed with Progressive Supranuclear Palsy. For almost two years we have been trying to find out what was wrong with her. We would notice things like her tripping on nothing and noticing she wasn’t as sharp as she used to be. Her coworkers had even reached out to me when this first started with their concerns. We would all ask her if she was okay and because my mom has always been tough, her response was always “I’m fine.” I had to stage a health intervention and was finally able to convince her to go to the doctor. I went with her to make sure she was being honest with them about her issues. Shortly after our primary care doctor told us they believed she had Parkinson’s. We felt relief with the news. We knew what this was and we knew what to expect. We were then referred to a neurologist and she was being treated for it since. Medicines weren’t helping and scans were causing more questions than answers. After all this they said she had Parkinsonism, because it wasn’t Parkinson’s exactly, but it was similar. Her final diagnosis is really rare, only affecting 5 in 100,000 people. As soon as we got her official diagnosis, we were told our primary care doctor and neurologist both feel hospice needs to be brought in. We barely had time to wrap our heads around her diagnosis and to know that hospice is needed was even more of an unexpected blow. We knew whatever she had, her condition is worsening quickly. We just didn’t think we were at the end. In just the last two months she has gone from walking to needing to be in a wheelchair. She is no longer able to dress, bathe or feed herself. My mom has always been an independent woman and always put others before herself. We are needing to prepare for any future medical costs and final expenses. Mom has no life insurance policy. She lost the one she had through her job when she had to quit due to her disability. My father has been her main caregiver and he is 80 years old. He also suffers from Early Onset Alzheimer’s. He is doing the best he can, but this is wearing on him. We always assumed with their age difference, dad would be the one to go first. He was not prepared to be her caregiver. They are also raising two of their grandchildren who are 11 and 13. I have tried to get my mom as much assistance as I can. Unfortunately she only has a limited medical plan. She didn’t qualify for Medicaid and Medicare won’t kick in until she has been disabled for 2 full years which won’t be until October 2021. Due to her condition we can’t get any type of life insurance now. I want to help take this financial burden off of my dad and let him know this is one less thing we have to worry about.
Organizer and beneficiary
Deanna Holloway
Organizer
Asheboro, NC
Ashley Lassiter
Beneficiary