Support Trent Lins' Fight Against Brain Tumor

Trenton Lins “Trent” is a young man who has been through a lot with his Craniopharyngioma a rare non cancerous brain tumor which was diagnosed in 2013 and came back in 2022 in October 2023 his memory went and he’s continued to decline.

This gofundme is to help as both of his parents have been his full time caregivers. Trent’s mom was his full time care giver since his diagnosis and his father has gone through all his FMLA/FIL. With this being said The Lins family have their hands full and need our help so they can tend to Trent and not worry about their house bills, medical bills and unexpected expenses they have endured during this time.

“Trent isn't doing very well right now... we have been at Duke University Hospital since Feb 28. He was moved to the Nero. ICU this past Wednesday. They are still trying to figure so many things out with not to much success... Please keep the prayers going for My Boy... this makes me feel so helpless... Trent's my boy and I cannot fix what is wrong...” from Trent’s daddy Justin

“Medical History:

January 30, 2013: surgery to remove Craniopharyngioma (Brain Tumor) at Duke University Hospital

February 2013: six weeks of radiation at Duke University cancer center

September 24, 2013: surgery to install shunt due to hydrocephalus (build up of cerebrospinal fluid in Trent's brain) at Duke University Hospital

May 10, 2023: surgery to remove recurring Craniopharyngioma (Brain Tumor) at Duke University Hospital (very little success)

November 13, 2023: one week of radiation at Duke University cancer center

Critical Care Problem List:

Principal Problem:

Diabetes insipidus (CMS/HHS-HCC)

Active Problems:

Craniopharyngioma in child (CMS/HHS-HCC)

Central hypothyroidism

Corticoadrenal insufficiency (CMS/HHS-HCC)

Hypopituitarism (CMS-HCC)

Hypogonadism, male

3rd nerve palsy, partial OD

Obstructive hydrocephalus (CMS/HHS-HCC)

Hyperlipidemia, mixed

Hemianopia, homonymous, left

Craniopharyngioma (CMS/HHS-HCC)

Osteoarthritis of knee

Edema of lower extremity

Gait instability

S/P VP shunt

Hypernatremia

Pathological compression fracture of spine (CMS/HHS-HCC)

Radiculopathy of lumbar region

Altered mental status

Partial Blindness (legally blind)

Hospital Stays at Duke University Hospital:

January 29, 2013

September 24, 2013

May 8, 2023 - May 14, 2023

October 16, 2023 - October 20, 2023

November 26, 2023 - December 1, 2023

July 29, 2024 - August 30, 2024

Currently from February 28, 2025 - today is day 24

This current stay at Duke University Hospital they have done 373 tests to date and will continue to rise daily.

At this time of writing this My Boy has had 1,149 TEST/PROCEDURES done at Duke University Hospital since we found out he had his brain tumor in January 2013.

After his second surgery on May 10, 2023 things changed medically extremely badly. In October 2023 Trent's memory declined rapidly, which was unexpected from his team of doctors and us. The best way I could describe it is rapid dementia, but it seems that his problems are due to his tumor size and the areas in his brain that it is pushing on. It is pushing on his optic nerves which has caused his vision to become extremely bad (legally blind). The Diabetes insipidus is a condition where you have no control over your urine dumping which is a life threatening condition itself. So, Trent is on DDAVP medication to try and regulate his urine dumping which is all based on your fluid intake amount. It is extremely hard to balance out. We all need our urine to stay in our body long enough for your body to get everything it needs to keep your body regulated. Trent's body is unable to do that itself due to the tumor pushing on the area that controls that in his brain. Trent's tumor location is the location in our brains that sends the signals to our body to control everything in our body 24/7.

My Boy is my hero, since his rapid decline in health I have not stopped trying to find things that may help him. The most important thing to me is to be with Trent and to help him anyway I possibly can. As a dad I have always felt my number one job is to protect and fix anything that is wrong with my kids. Not being able to remove Trent's tumor is killing me from the inside more and more every day. I would switch positions with my son in less than a second if I could.”

Trent was a hard worker and loved living on Emerald Isle! His smile was infectious and everyone who knows him will say he did not know a stranger! From him greeting you at South Swell to Fish Hut he was a dedicated employee and assist to our community! He enjoyed being part of Surf Rider Foundation and hitting the waves every chance he had!

If you are able to help support Trent during this time and the Lins family please do so!

We will be holding the gofundme along with a fundraiser for Trent on April 5 10-2 at Harmony and 3-6 at Thirsty Surfer where we will be selling t-shirts $30, live music and a silent auction where all proceeds go to the Lins family!

The link below is for anyone wanting to purchase pre April 4 you can pick up at Harmony or order online for shipping starting April 2!

https://harmonysurfsupply.com/products/support-trent-lins-fight-against-brain-tumor