Support with hospital related expenses for Addie

Our sweet niece, Addison Harper was born premature and was diagnosed with a serious genetic condition called PDCD - pyruvate dehydrogenase complex deficiency.

To put it simply, she cannot turn carbohydrates or glucose into energy. Her condition has so many other side effects including low tone, small stature, small head size, seizures, Spacisity, Cerebral Palsy and a shorter life expectancy.

Addison’s body was basically using her major organs to get energy, which is what is causing her to have seizures. Her specialists have her on a medical keto diet (special formula, special vitamins, special medication that her body can process, etc.) which she will have to be on for the rest of her life. Unfortunately, Addie has developed infantile spasms which is a different type of seizure than she was having before.

Addison’s parents, Casey and Hayley, have been driving at least 100 miles round trip for all of Addie’s specialist appointments, surgeries, testing and emergency visits and admissions. Addison is the youngest of 7 children and between unpaid leave at work, cost of parking at the hospitals, gas to get back and forth to Sacramento and food, they are starting to drown financially. I know times are tough for a lot of people so you know that every little bit can make a huge difference.