Supporting Ben West

Hi there. I'm Katie West, and I'm fundraising for one of my favorite people in the world, my big brother. I thought rather than trying to explain myself something that still seems unimaginable it would be best to hear directly from Ben, so his message is below. From me and my whole family, your kindness and support bring all of us hope, making this dark time a little brighter.

From Ben: Asking for help has never been comfortable for me but here I am, humbly asking for it. As some of you may know, in August of 2021, I began experiencing neurological issues with my feet and legs. Over the next 18 months, I went through countless tests and treatments to find a cause, and treatment for what was happening to me. Unfortunately, all these attempts were fruitless. In late March of 2023, I began to see an acceleration of my symptoms to my arms, throat, tongue, and respiratory system. An EMG on 5/11/23 confirmed the worst case scenario....ALS.

I know the severity of my diagnosis and know the end result. Though my means of death has been chosen, how I choose to live until that time comes is up to me. Expenses will continue to mount as will my symptoms. My body doesn't allow me to do much, but I would like to lighten the financial load on my wife Sage, our 11 year old daughter Sienna, and myself. The medical needs/expenses for this disease are vast and overwhelming. Insurance will cover certain costs, but we have learned nothing happens with insurance in a timely manner, and they are particular about what they deem to be necessary care. We are also exploring some non-profits that can help with certain devices that will allow me to communicate with loved ones as the disease progresses. That said, there will still be a large amount of costs we will be responsible for.

All donations will go towards a transit vehicle that is power chair accessible; retrofitting a section of our house to assist with care as my symptoms progress; medical costs/devices that insurance will not cover; and home care as my symptoms worsen and I am unable to care for myself. Every dollar will go to these things and if there are any unused donations, those funds will be donated to the Steve Gleason Foundation. If you are unable to donate, thoughts and prayers for our family are also greatly appreciated.

I know the road ahead is daunting, and the journey will be tough, but I vow to try to capture each moment and approach each day with as much patience, love, strength, and courage as possible. Thank you for all your support.