Supporting the Scott Family
Donation protected
After some convincing, and many requests from friends, Jenn and Patrick agreed to let us start up this page so that friends and family will have a way to support them and their girls until Jenn turns a corner with her lupus diagnosis and starts to feel more like herself again.
The strength that she and Patrick have maintained for such a prolonged period of time with this illness is astounding, and their efforts to keep their girls' lives as normal and carefree as possible is nothing short of remarkable. When I first found out that Jenn was sick I was shocked, because they seemed so genuinely happy, and positive, and made me feel the same way. It was a testament to their resilience.
In the same way that they have brought happiness into our lives, they could really use a boost from us all right now.
Thank you so much for your love and support,
Robyn :)
Here is a letter from Jenn, because you want to hear from her, not me!
Hello! We are the Scott Family from West Vancouver, BC. My husband, Patrick, and I have two young girls (ages 5 and 3) and had pretty ordinary lives until the summer of 2015 when I got sick. After developing inflammation in my spinal cord, brain, and joints, I noticed my hair was starting to fall out. My rheumatologist put the pieces together and I was diagnosed with Systemic Lupus Erythematosus (SLE) in February 2016.
After a period of relative wellness, I have now been very sick since the end of March 2017. I have pericarditis (inflammation around my heart) and I have lost the use of my digestive system (gastroparesis and intestinal dysmotility). I have been in the hospital for over a month, undergoing testing, trying new feeding tubes and formulas, and preparing to start more intensive therapies such as IVIG and cyclophosphamide (chemotherapy). I have made some progress, but further treatment is needed. The goal of the new therapies will be to better address the underlying inflammation caused by lupus.
While we have been well supported by close family and friends, as this illness continues it is evident that we need a bit more support.
We have set up a calendar to organize child care, meals, errands, and rides to medical appointments. Please contact Robyn if you are interested in participating.
Many have offered to help financially, but we didn't know what to say or do. As my body's needs become more complex, we are learning that not everything is covered by public health care. My new feeding tube formula, for example, costs us over $1100 a month. With the increase in expenses and offers of financial support, we realized it was time to accept help.
Thank you from the bottom of our hearts for your thoughts and prayers, play dates and donations. We are truly blessed to have such an amazing village of support around our little family.
Sincerely,
The Scott Family
To learn more about lupus:
http://www.lupus.org
The strength that she and Patrick have maintained for such a prolonged period of time with this illness is astounding, and their efforts to keep their girls' lives as normal and carefree as possible is nothing short of remarkable. When I first found out that Jenn was sick I was shocked, because they seemed so genuinely happy, and positive, and made me feel the same way. It was a testament to their resilience.
In the same way that they have brought happiness into our lives, they could really use a boost from us all right now.
Thank you so much for your love and support,
Robyn :)
Here is a letter from Jenn, because you want to hear from her, not me!
Hello! We are the Scott Family from West Vancouver, BC. My husband, Patrick, and I have two young girls (ages 5 and 3) and had pretty ordinary lives until the summer of 2015 when I got sick. After developing inflammation in my spinal cord, brain, and joints, I noticed my hair was starting to fall out. My rheumatologist put the pieces together and I was diagnosed with Systemic Lupus Erythematosus (SLE) in February 2016.
After a period of relative wellness, I have now been very sick since the end of March 2017. I have pericarditis (inflammation around my heart) and I have lost the use of my digestive system (gastroparesis and intestinal dysmotility). I have been in the hospital for over a month, undergoing testing, trying new feeding tubes and formulas, and preparing to start more intensive therapies such as IVIG and cyclophosphamide (chemotherapy). I have made some progress, but further treatment is needed. The goal of the new therapies will be to better address the underlying inflammation caused by lupus.
While we have been well supported by close family and friends, as this illness continues it is evident that we need a bit more support.
We have set up a calendar to organize child care, meals, errands, and rides to medical appointments. Please contact Robyn if you are interested in participating.
Many have offered to help financially, but we didn't know what to say or do. As my body's needs become more complex, we are learning that not everything is covered by public health care. My new feeding tube formula, for example, costs us over $1100 a month. With the increase in expenses and offers of financial support, we realized it was time to accept help.
Thank you from the bottom of our hearts for your thoughts and prayers, play dates and donations. We are truly blessed to have such an amazing village of support around our little family.
Sincerely,
The Scott Family
To learn more about lupus:
http://www.lupus.org
Organizer and beneficiary
Robyn Faraone
Organizer
West Vancouver, BC
Jennifer Scott
Beneficiary