Surgery for Grace

My granddaughter was born March 8 2006. The doctors told her mother, my daughter that she would not live more than 7 months. She is 9.years old. Grace was born with a rare condition called hydranencephaly. My daughter was only 17 at the time. Grace was born at Duke Medical Center. NC. At that time there wasn't a lot known about this condition. We were faced with a decision as to what surgery she should have to drain the fluid . It was either shunts or an experimental surgery to remove the membrane that creates the fluid surrounding the brain. Grace was born with the brain stem and small amount of brain. She has thrived due to the decision to do the experimental surgery. That was the first time this surgery had ever been performed at Duke. Grace also has CP . She is blind and cannot walk or talk. She can here and feel. She smiles when she hear our voices especially the voice of her mother. she is truely a miracle.Now a little bit about Graces beautiful mother. My daughter Regan who I admire so much. Regan was 17 when Grace was born . She has never given up. I can't imagine having a child at that age much less a child with special need. Regan is a very independent and brave young woman. She has always provided for Grace . She is also surrounded by a very loving family. She made sure she got an education and found a wonderful job so she could provide Grace with everything  she needs. Only a year after the birth of Grace . The love of her life, Graces father Joey, was killed in a car accident. How much could a young person take? I ask myself. I stand amazed at what Regan has accomplished. For a long time she told me that she knew she could never be happy. That has made me so very sad. She then found a job that she loves. Got a house for she and Grace and things started falling into place. Now we're faced with another surgery for Grace. She has to have spinal surgery due to scoliosis . The decision to go through with this surgery was a hard one to make. Putting Grace through another surgery and going through the pain isn't easy. As the scoliosis progresses there will be pressure on her lungs which will make it difficult to breath and there is also pain due to the progression. Grace will be having surgery on Jan 11th. Regan was able to take time from work thanks to a wonderful employer and the family medical leave act. She will not be able to receive pay from her time off . Duke is an hour and a half away from where we live . We're not sure how long she will have to stay in the hospital. That's why I'm asking for help with the expenses. She will still have to pay her expenses at home and while she's away at Duke. I ask because Regan is a special young woman that needs to focus on Graces recovery and not have to worry about how she's going to be able to pay her expenses. Thank you for your help. God bless!