Sweet Baby Boy DJ

DJ was born December 7, 2018 with a very rare skin disorder called Epidermolysis Bullosa. His skin is extremely fragile and can blister or tear with even the slightest touch. Only 20 out of 1 million people get it a year and unfornutely our sweet baby boy is suffering from it. The blisters are very painful to him even on a morphine drip. He also has blisters in his mouth that are preventing him from getting proper nutrition. He will be having several surgeries in the next following days and he will require daily wound care for the rest of his life.  My family is not only asking for Prayers, but we are asking for assistance with upcoming medical bills, supplies... And because me and my husband will not be leaving the NICU until we can bring our baby boy home and I will not be working at my job as a RN, we are asking for assistance with household bills and things of that nature, just until I am able to go back to work. Anything will help and we are deeply grateful for any assistance. Thank you.