Sweet Iris's Sweet 16 - Please help Cure GM1

Double your donation up to $16K through Rare Disease Day, 2/29 and honor Sweet Iris for her Sweet 16 on Feb. 19th!

curegm1.org/donate (option for no fees with PayPal Giving Fund)

Your help is critically important to all those dying due to GM1 gangliosidosis. You can help us make a difference!

10+ years ago, Iris was just about to start kindergarten when our world was completely changed forever and shaken by a fatal diagnosis of GM1 gangliosidosis. Doctors who were uninformed about juvenile GM1 told us that she had over 5-10 years left to live and she's still here, still fighting for every single day and moment. We founded the Cure GM1 Foundation in her honor and in honor of all those suffering from GM1 gangliosidosis. Significant strides have been made. There have been 4 clinical trials since 2019 and there were no trials prior to the creation of Cure GM1. Although only one trial is still running, the remaining trial is in Phase 3, the final stage. Many rare disease programs have been shuttered due to a downturn in biotech and gene therapy. We remain hopeful, but the reality is that this fight continues to evolve. There are still many ways that we can contribute to help, including next generation therapies, newborn screening, continued advocacy, and more.

Want to join me in making a difference? I'm raising money to benefit Cure GM1 Foundation, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

More information about Cure GM1 Foundation: Cure GM1 is the only 501(c)(3) dedicated to funding medical research for a devastating neurological disease called GM1 Gangliosidosis. GM1 is always fatal in children.