Please help Sweet Emmalyn with the care she needs

Hello, My name is Nicole Swanson and my best friend is Stephanie Freeze and Emmalyn’s mom. Emmalyn suffers with some of the same conditions that I do. I know how painful and hard it is for an adult to handle chiari malformation and EDS let alone a girl at the age of 14. Emmalyn is 14 years old and started her journey with Chiari Malformation, EDS, Tethered Cord Syndrome and Syringomyelia at the age of 3. She has been through 52 brain/spine surgeries. She deals with 10/10 head and neck pain everyday, along with arm and leg pain. In the last 11 years since her first surgery she has had more diagnoses, such as Adhesive Arachnoiditis, CSF Leaks, IIH or dealing with high pressure with a VP Shunt, and she also has craniocervical instability. All of these diagnoses are life long and have no cure, can be very painful, and most time the only way to help is surgically. I understand more than just about anyone what the pain poor Emmalyn is going through with not much to help. It would mean so much to me and to them if any of you would help reach this goal.