Syd's Journey

After many months of medical procedures and tests, visits with specialists, and a quest to learn why Sydney was steadily regressing and losing strength, Sydney Jo Kenning was diagnosed on September 24, 2019 with leukodystrophy; a rare, progressive, metabolic, genetic disease that affect the brain, spinal cord and often the peripheral nerves; a terminal diagnosis.

Sydney’s time here on Earth will be far too short, and unfortunately, her treatment options are limited as there is no cure for this disease. Over time, Sydney will be robbed of the ability to crawl, see, hear, and swallow until she is bedridden and dependent on a feeding tube. Her amazing parents, Adison and Samantha, are doing all that they can to care for Sydney, as her needs become more demanding and complex. They have accrued medical bills while they fought to get Sydney appropriate health care and to find a diagnosis over the past year. Adison and Samantha have also acquired legal fees while advocating for Sydney to get the insurance coverage that she needed and deserved. Samantha has taken a leave of absence from her job to help care for Sydney, and as Sydney’s health continues to decline and she becomes more and more dependent, the need to unite and help this wonderful family has never been more evident.

Now is our chance to do all we can to ensure the Kennings can spend as much time as possible as a family instead of worrying about the financial burden associated with this devastating diagnosis. Sydney is a sweet two and a half year old who adores her older siblings, Kenley and Cainan, she has the sweetest giggles and kisses, and she deserves to have the best care available. We hope you will join us in supporting Sydney and her family. Please feel free to follow Syd’s Journey on Facebook.