T1D Action Group

Recently, Connecticut endocrinologists have been informed they may no longer put “per parent” within a range for insulin dosing decisions on school medical orders for our Type 1 kids.  The previous version of the medical order form was created in collaboration with the Pediatric Endocrinology departments at CCMC and Yale in 2013.  This form was used until this August, when the State Board of Education removed the “per parent” language from the online form and ordered that it no longer be used in any medical orders issued by CCMC and Yale.  This takes any and all dosing decisions away from those who know best, the parents and guardians who know the care needs of their Type 1 kids through and through.

 This takes away our ability to care for our children appropriately while they are in school.  New pump site, old insulin, coming down with something, extra activity; these are all things that can change how much insulin our kids might need.  Diabetes is not “set it and forget it”.  We need these ranges and the ability to make adjustments to insulin dosing to allow us to make the best decisions for our kids moment to moment when the need arises.  Without it, the chances for extreme fluctuations in blood sugars (high and low) increase tenfold also increasing the time out of the classroom, and in the nurses office, for our kids.

 We are a group of parents working towards getting the form changed back to the previous version in order to give our kids the care they need.

 We are fundraising to help our group raise the needed legal fees.  Please help if you can.