Team Sebastian - celebrating Sebastian's legacy

Our brave hero lost his battle against Neuroblastoma on 28.1.24 - we will celebrate his legacy by using fundraised money to support local children and their families who have complex medical and learning needs in lots of different ways.

We will keep our Go Fund Me active until the end of 2024 to update on where those donations will go. Any money you choose to donate from this point onwards will support those children and their families.

Thank you to everyone who has supported us since his diagnosis in 2020.

Sebastian is six years old. Three years ago, he was diagnosed with Neuroblastoma, a rare form of childhood cancer that starts in the abdomen and can spread across the entire body.

Over the past three years he's received near constant treatment on the NHS and through UK-based clinical trials but, in June 2023, his consultant confirmed that the cancer was once again spreading.

The odds for survival after relapse are low, and we are almost out of NHS-provided free treatment options. We are therefore asking once again for donations to help toward the cost of his treatment and ongoing care.

If the best options for lifesaving treatment are outside of the UK it's likely to cost around £200,000. We are fundraising to cover both the cost of this potential treatment and for Sebastian to be supported by his parents and be able to live a happy life while he is unwell.

We don't know for certain yet what the next step is, but there are promising treatments in Europe and the USA. Sebastian's illness won't wait while we raise money - so we're starting the fundraising now and will continue to provide updates via this page.

Your donation will go directly to help and support Sebastian's care, treatment, and recovery. Any leftover funds will then be donated to a UK charity focussing on fighting this rare disease.

Team Sebastian will continue to post regular updates. If you have any questions, or would like to do a sponsored event or fundraiser of your own to raise money for Sebastian, please reach out using this page. To learn more about neuroblastoma, search for 'Solving Kids Cancer' who are a charity that specialises in this rare disease.

Thanks for your support,

Team Sebastian

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Our original post from 2020:

Sebastian is three years old. He loves his toy kitchen, playing his grandma's piano, and spending time at home with his mum and dad. In July this year, he was diagnosed with Neuroblastoma, a rare form of childhood cancer that starts in the abdomen and can spread across the entire body.

Sebastian's cancer is quite advanced, and now is the time to rally round and support him and his parents, Gregg and Lindsay, in their time of need. He's currently in hospital undergoing initial treatment on the NHS, so right now we're fundraising for potentialtreatment abroad, and for one or both of Sebastian's parents to be able to take some time out of work to be there for him.

Your donation will go directly to help and support Sebastian's care, treatment, and recovery. Any leftover funds will then be donated to a UK charity focussing on fighting this rare disease.

Team Sebastian will be posting regular updates. If you have any questions, or would like to do a sponsored event or fundraiser of your own to raise money for Sebastian, email [email redacted].uk. To learn more about neuroblastoma, Cancer Research UK has a useful page you can read.

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(Team Sebastian is managed by Sebastian's immediate family. Any comments left for them or Sebastian will be passed along and gratefully received. You can contact us directly through this page - thank you for respecting the family's privacy at this trying time.)