The banks family our beautiful daughter Kaylin

I'm kaylins mum, her nickname is Digs so I'll be calling her that.

So digs has a lifelong condition called sacral agenesis it affects 1 in 60000 with no cure. We can only treat her symptoms. She has a colostomy, uses catheters and has chronic pain. She had many kidney infections which is now affecting her kidney function, she is anaemic on top of this.

She has had a very tough life, she has never gone a year without a surgery or 2. The last few years have been very traumatic with her body rejecting various things. And having emergency admissions. She is now under investigation again for her bowel. She has to have an investigative surgery with cameras, biopsies etc. This will be number 38! She doesn't sleep well Due to pain, even though she is on many medications this isn't helping due to the new problem. She recently had to go in a morphine based pain killer to help an acute episode.

I'm unable to work as I'm her full time carer, Daddy works for the railway but often needs emergency leave for our many hospital stays.

Our life isn't normal but it's normal to us. We are a very close family and Digs big sister is a brilliant sister to her. She is away at university but is still always there for her. Digs passion is musical theatre and music. Being able to take her to things like this is like therapy for her. But we are unable to afford it ourselves as it's so expensive.

The money raised in 2022 was used for many things, hospital stays and then theatre trips when she was well enough. We also managed a few days in Cornwall to see nanny and grandad. So it was much appreciated to give Digs something to do away from hospital.

We'd love to be able to take her in some more trips to the theatre and see her favorite music stars.

All Donations go directly into digs bank account x