SUPPORT, VMan's Venture Post Transplant

Hello we are the Hayes family and this is our story.

We would like to introduce you to Vincent! He is also known as V-Man, our little super hero.

Vincent was born with Gastroschisis, on September 2, 2019, at Duke University Hospital, but it was more of a complicated case than doctors predicted. His intestines were found outside of his body, due to the abdominal wall (belly) not fully closing.  For Vincent’s case, this meant his intestines (large and small) were exposed to the amniotic fluid since he was 12 weeks. The doctors reassured us that “this is the best birth defect to have” because outcomes are so favorable in the U.S.

Josh and I, were thrilled that this was nothing life threatening. We expected a quick surgery after birth, at most a month - 3 month stay in the NICU and we would be bringing our baby home as soon as he could handle processing food. It wasn’t until Vincent was born that we knew the extent to which his intestines had been damaged. We were told the outcomes were not favorable for Vincent on day 6 of him being alive we were told, "to take him home and make him comfortable".

When we made the choice to save Vincent’s life, we never knew the extent of the journey we would be on, to keep our new family of 3 whole. We transferred to Cincinnati Children's Hospital on September 28, 2019. 

VMan and our family have been at the hospital, since that day. 

* December 16th, 2019 - Doctors told us that rehab wasn't an option for VMan, to give him a chance to survive he would need a transplant. 

* January 9th, 2020 - VMan was officially listed for a multivisceral transplant, a four organ transplant of (liver, pancreas, small intestine and colon). 

* May 17th, 2020 - We got the best call of our lives at 6:51 am, VMan was a match to an Angel that lost their life. 

* May 18th, 2020 - VMan started Day:0 Post Multivisceral Transplant and his second chance at life. 

* June 10th, 2020 - VMan contracted graft vs host disease and begins his tough fight beating transplant

* July - VMan is losing the fight of graft vs host disease, due to steroid refractory and isn't a candidate for photopherisis. VMan is due to start Campath, a chemotherapy, to help VMan start to truly recover from his transplant. 


We appreciate all the support of our baby boy. 

Our campaign will support our family through his current "Venture" and his greatest "Ventures" yet to come.
* Hospital Bills
* Food, Lodging & Transportation to be near hospital
* The cost of temporary “home” and needs while living in Ohio. 

We are forever grateful to all prayers and support.
If you find it within your hearts to help our family, any donation is appreciated.
If unable to donate and you want to help, please share our story and follow our pages  


Thank you for helping us be “VManStrong" and support our little super hero on his greatest "Venture" yet. 

Everyone who has called, text or messaged us on social media. The prayers and kind words have given us strength to fight for Vincent. Those gestures are greatly appreciated beyond words. We love you all and are in awe of the kindness of people.

Love,
The Hayes Family


Additional ways to support #VMansVentures:

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