The DysautoKNOWmia Project: Transforming No to Knowledge

Hello, my name is Sophia, and I am a freshman in high school. Like many teens across the country, I juggle the everyday challenges of homework, friendships, activities, and planning for the future. But unlike many of my peers, I also live with POTS.

Living with POTS has taught me something profound: we exist in a beautiful contradiction. On one hand, POTS shapes our daily lives—the medications, the accommodations, the constant need to explain our condition to others who don’t fully understand. On the other hand, we are so much more than our condition. We are athletes pushing through despite our symptoms. We are students achieving academically, even on our toughest days. We are musicians, dancers, artists, and teenagers who refuse to be defined by our Dysautonomia.

The DysautoKNOWmia Project is a movement to raise awareness and funds for research but also to take action. There is so much we still don’t know about POTS—about the causes, the treatments, and how all the seemingly random symptoms tie together and impact our lives. Your donation will go directly to Dysautonomia International, a non-profit that seeks to improve the lives of individuals living with autonomic disorders through research. Your participation will make a real difference in the fight for more research, better treatments, and a future where those living with POTS have the answers we desperately need.

I know there are many great causes to support, and I’m grateful for any help you can provide. Thank you for supporting me and so many others like me.

Sophia