The Future of Edwards’ Syndrome Association

The Edwards’ Syndrome Association was founded by several parents of children diagnosed with Edwards’ Syndrome or Trisomy 18, as it’s also known. Community is how we first connected. Community is how we educate ourselves and troubleshoot to help our kids every day. Community is how we help the newly diagnosed parents today. And community is how we believe we are going to change the future of Edwards’ Syndrome/Trisomy 18—together.

The ESA is being created because we see a need to unify and amplify our community on a much broader scale to shift mindsets and empower parents all over the world, in all stages of their journey with their children diagnosed with Edwards’ Syndrome/Trisomy 18.

We know that community is the heart, soul and backbone of this diagnosis and that community will be how we achieve all that we’re setting ahead of us.

With your donations*, we will get launched as a 501c3 non-profit, so we can begin the work ahead: to change hearts and minds alike about ES/T18 and ensure that every parent feels empowered to care for their child how they choose—from pregnancy, through the first year and beyond.

Join us and let’s change the future, together.

*All donations will be used for the purpose of 501c3 legal startup costs. Any remainder will be used for website and launch materials.