The Timmerman Family

Nearly two years ago, the Timmerman family received the unthinkable news that their son Jack had been diagnosed with CLN1 Batten Disease—a rare and fatal neurodegenerative disorder. There is no cure, and no FDA-approved treatment. Since then, I’ve watched my dear friends walk through this nightmare with unimaginable strength, grace, and bravery.

They have poured everything into giving Jack a life filled with joy, dignity, and hope. From therapies and doctor visits to cross-country travel in search of answers, they’ve fought every step of the way—not just for Jack, but for their twins as well. The road has been heartbreaking and often torturous, but they’ve never stopped believing in the possibility of something better.

Now, there is a glimmer of that hope. Jack has been identified as a candidate for an incredibly rare compassionate use treatment that could slow the progression of this disease. It’s not a guarantee—but it’s a chance. And it’s one they’re willing to fight for.

This journey is emotionally, physically, and financially overwhelming. The GoFundMe I set up for them two years ago is still active, and I’m sharing it again because I know many of you have asked how you can help. Every donation—whether it’s $10 or $1,000—helps them cover travel, lodging, time away from work, childcare, and all the unseen costs of this relentless battle.

If you’ve been moved by Jack’s story or the grace with which the Timmermans have carried this load, please consider helping. Your support means more than words can say.