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Tough Mudder in aid of FND Hope UK
Hi my name is Naomi,
On the 21st September, myself and some amazing friends are attempting the London South Tough Mudder 3-5 mile course. Back in April my best friend Aimee Brett was diagnosed with FND (Functional Neurological Disorder).
Functional Neurological Disorder is a condition that is seriously lacking in education, research, funding and is still greatly stigmatised by health professionals and professionals in the field.
In basic terms Functional Neurological Disorder describes a problem or signalling issue with how the brain sends messages throughout the body.
Think of the brain as a computer, individuals with FND has the hardware intact but there is a software issue or a glitch.
Individuals experience very real, progressing and often more life rehabilitating symptoms than those individuals who would suffer from MS, Parkinson’s, brain injuries and other conditions.
Symptoms of FND include:
- Uncontrollable tremors
- Drop foot
- Slurred speech
- Involuntary jerking
- Eye rolling seizures
- Chronic Pain
- Dystonia
- Difficulty Swallowing
FND requires multi disciplinary layers and extensive rehabilitation involving physiotherapy, CBT, psychological treatment, occupational therapy etc.
FND can happen to anyone . Professionals are trying to push education and awareness for more vital research and for sufferers to be treated fairly and appropriately, which often isn't the case.
Starting a conversation about FND is vital to make a change.
We are taking part in the Tough Mudder to not only to challenge ourselves but also raise to raise money for “FND Hope UK” a charity chosen by Aimee.
Aimee has created an Instagram account to educate and raise awareness. https://www.instagram.com/aimeebrettskifnd
We understand not everyone may be in a position to donate. We would still appreciate your thoughts and also spread the word about this fundraiser.
Many Thanks
Naomi Ayres, Aimee Brett and the amazing friends who have agreed to do the Tough Mudder!
More information about FND Hope -UK: We promote awareness of FND through education and raising public understanding in England and Wales. We are dedicated to supporting those individuals affected with functional symptoms by advancing research into practical applications for the prevention, treatment and recovery of FND.
We are uniting patients and their families from the UK with leading researchers and advocates to pioneer a new standard of care for FND throughout the world.
Organizer
Naomi Ayres
Organizer
England
FND Hope -UK
Beneficiary