Support for NY uncovered medical & travel

Hi,

I'm Linda.:)

Most of you, know me, as the girl with the 'Blue Helmet'. :)

I had a goal last time that got met after 4 days of flying colors! I couldn't believe how cared about, & supported I felt!! The goal helped with alot of the needs I had, but I'm changing the goal, due to medical reasons that have risen up, and the fact the funds have wings!!!

I've factored in some things that will be needed, as I've shared most all, by now. We just never know when life is going to throw a fast ball!!! ;-) atleast I can hope I'm covered, but my every need is met according to the Word of God. He takes the greatest care of me! Ty, Lord!!

Beings this is an update, you can scroll down passed all that I said, below, to the next part. I will specifically show you where to start reading. :-)

Skip...First off, In 1988 I had a brain tumor that changed my life! God filled my heart with his love, and has called me to freely share his love with others!

I am a giver, & Its been very hard on me, having to be on the receiving end, for so long!

In 2018 and 2019 I flew to Johns Hopkins in Baltimore, for the same surgery, I am needing, again, because J.H. did not tell me they were using a Titanium mesh. I came home with no contour, and the biggest plate, ever!

(102 screws)

I was stuck with this and had no options, but to acct it happened for a reason, to seek peace, and pursue it. This is the second T. Mesh, Johns Hopkins put in, knowing the first one, sharp edges poked through my head, looking 'like a nail' my son said.

I don't know what God has planned, but I know it's all good, and I don't think my story is over, yet.

I have decided to go to Mount Sinai in NY, which specializes in Cranial reconstruction. It will be confirmed that T. Mesh will NOT be used.

The purpose of this go fund, is for air travel, & Uber transportation, to & from the hospital, and back to LGA airport. I need to take 6 trips from Uber.

I already had one appointment with Dr. Taub, the surgeon at Mount Sinai, in Jan. 2023 and there was a nursing strike, on the streets. When I got back, there was a plane glitch, shutting down every flight in the USA!

I thought I should stay in Florida, at that time, but knew in my heart, that Dr. Taub was the only doctor that was willing to do this big surgery, and now after having surgery at 2 different Florida, hospitals, (going through numerous doctors, that can't help me), My decision to go back to NY, is decision Im making only so I can finish 'the race', make every effort to finish well!!

Knowing Dr. Taub already, & what needs to be done, and his willingness to do this surgery,

(cranial reconstruction) is my open door to get the correct help, I need, because

right now, my body is rejecting this T. mesh. implant.

mesh, and now since my last surgery, I had an incision infection, leaving me two more openings, showing mesh & the bone paste, that was just put in, on May 24th.

It's been a bit rough, but God is faithful, and a sense of humor goes a long way!

Phil.4:19, says he will supply all my needs, so I'm using 'go fund' to see how this goes. :-)

Numerous friends and family, have supported me, & I am so very grateful to & for all of you! Not naming names, you know who you are. Ty, so much!

So, I will need to go back and forth, to Mount Sinai, 3 times. This will be 1 round trip, & 4 One Way, trips. I will not know what my discharge days will be, so I'll need to make flight arrangements from the hospital, and Uber to the airport. Also, I will want to tip the people wheelchairing me, through the New LGA, which is about a mile stretch! Oogie!

If God wills, I will proceed to go back for part 1 surgery, come home wearing a helmet, then after 2-3 months, the implant will be ready. It is made in a lab by 3D CAD. The material will be either PMMA Acrylic or PEEK.

Funds donated will take care of all the travel costs, to Mount Sinai in NYC. for for my total cranial reconstruction. My goal may change as the need arises, due to the fact this is only a go figure. I have no secondary, so deductibles and noncoverage of implant may need to be included in this *goal*..

Thanks to you, everyone!

Jesus loves you, & so do I!!

❤️

Start re-reading, here..

The update to this story, starts with a 'great big', thank you!!

So, Oct. 3rd, I got back to Mt.Sinai for Dr. Taub to completely remove the 'eroded' T. Mesh. Stayed one week, & came back to Fl. (wearing helmet), but not for long. The helmet was very heavy, & the sutures were painful, so I only wore it home. Now, it's in a box. :-) till I can get all this medical stuff straightened out.

Since 2022, I have had 3 cranial surgeries, 3 incision infections, (one after each surgery), & 3 more open wounds on scalp with each one showing exposed bone.

A culture taken showed Psuedanomas of bone, which is acually Ostiomylitis. This was treated by 6 weeks IV antibiotics at home, and is normal range, now, so my hopes are up, that it is completely gone!! Although, I am still under physician care, and will need to take oral antibiotics until my next surgery.

This was 'quite' the setback!!

I am disappointed that I can not tell you that my next surgery, I am going back for 2nd part of implant. No, I'm not a happy camper, and dont pretend to be one, although I know everything is going to be ok..

By God's amazing grace, I am doing better then I should be!!

Dr. Taub removed ALL the titanium mesh, and he said there was more bone then he expected.

Now, he will be removing the bone that was infected, and doing a skin graft.

I just can not wait till all this is over, and I get my implant, & get completely healed!!

So, I just got my scheduled surgery for March 12th. I need the skin flap to cover these areas of thin skin & exposed bone. I need your prayers & support, and encouragement! Ty!

We all know about the hills and valleys, and how unstable & unsure life can be, but,

I want to share how God never changes. His ways are not our ways, but we can have his peace going through the storms, when we ask for his help.

Trusting him through it all, is the sure foundation we all need.

We can only take one day at a time, and know God is in control.

For the past few months, I wasn't sure of anything, so this update is a bit behind, I was just in the wait for surgery date, in-between hospitals, treatment, and alot of medical care, etc.

I dont update until I have some 'real news' to share, so now that I have a surgery date, again, time is going way too fast!

I'm getting things prepared, and trying not to run away. ;-)

The worst is almost over.

I believe God has a reason, and a season, for us all, and for such a time as this. To do what we know we have to do to stay close to our loved ones, and those who should need us!

I will receive these gifts gracefully, and know its to see me journey through this, trying time of testing, and come out on the other side. You will see me rise!! ;-) and,

I have been so blessed by you, all who support & lift me up!! Ty, so much!

I will update you, after my next surgery.

I'll be in NY hospital for 2 weeks, from March 12-26th, then come home to heal...

My life is in God's hands, and theres no place Ide rather be!!

Gratefully yours, ❤️

Linda