Treatment for serious illness

Hi, I am raising money on behalf of my friend Sadie. Sadie is 41 and has always been a strong fit outgoing person. In March 2024 Sadie started with a pain in her arm which felt like she had sleep funny. This has now progressed and her arm muscles continually spasming, her hand is locked in a “claw like” position. The pain and spasms have also spread to her back and she is stuck in a very painful unnatural posture. It’s a bit like if you have ever gotten cramp in your calf and the excruciating pain that causes, having that in your arm and back continuously without it stopping. She is unable to sit or stand up, therefore she spends all day lay down whilst her body continues to spasm. She is unsafe on a bed due to the spasms and is on the floor. This has caused horrendous bruising, carpet burns and sores to her skin. She is unable to complete the simplest of tasks such as bathing, cooking for herself, feeding herself. She has had CT scans and MRI scans which had to be done under general anaesthetic as she couldn’t keep still enough due to her spasms. So far no diagnosis has been found and she is on a waiting list for the pain management team. She has been to A and E 11 times, 3 via ambulance. The picture above is of her on the floor in A and E with the average wait time being 7-9 hours. The longest was 14 and a half hours with her on the floor in excruciating pain. She has also been admitted to hospital numerous times but still no diagnosis has been found. She has been living with this pain since March 2024 and the earliest appointment for the pain management team is July 2025. Due to the nature of this illness and its being completely debilitating nature Sadie is unable to work and has lost custody of her 12 year old son as she is unable to take care of herself or him. The impact of this illness to her personally and her family is catastrophic.

We are raising money to pay for private treatment as she can’t live with this pain any longer. The initial consultation appointment is £250. Any further tests, appointments and treatments are on top. We have estimated £2000 to start with but costs could easily exceed this.

Any help towards Sadie’s treatment will be so greatly appreciated to get this amazing young lady back to herself xx

EDIT- please note the picture above is in A and E. A lot of people have commented about the carpet. To clarify, there was no space in A and E so she was moved to the entrance in the door way, this is why there is carpet. Through the first double doors there is a carpeted area which is where Sadie was with lots of others over spilling from A and E. Through the next double doors is A and E and yes that section is not carpeted for obvious reasons. Hope that clears up the picture.

UPDATE - thank you so much to everybody who has donated or sent messages of support, suggestions of diagnosis and doctors etc.

So far last week we saw two different specialists, these cost £550. We have been referred to a specialist in Bristol and are awaiting for an appointment with her. Her initial fee is £275 for the first appointment. I am also looking into ways of getting Sadie there safely as she can’t not sit to travel. She needs to be able to lie flat and on a back seat of a car is not safe for a 2 hour journey. Also the physical toll it will take on her body will be massive and she will probably not be able to travel back the same day. This will all be funded by your kind donations.

I have paused the go fund me for now as we have been able to raise a large amount thanks to you. Hopefully this will be enough and I will update you on her progress.

Thank you so much again for your support from myself, Sadie and her family xx

please note funds will be transferred to my account as I am dealing with Sadie’s finances for her due to her reduced capability. All invoices for appointments/ treatment come to me and I pay them out of the go fund me money.