Trigeminal Neuralgia- The Suicide Disease

Hi friends! My name is Rachel and I’ve created this fundraiser for my mom, Sandy, who is struggling with debilitating Trigeminal Neuralgia.

Here’s her story:

In 2021, after receiving her 3rd C Boost, she started having nerve twinges in her face. Unsure of what was going on, she didn’t mention anything to anyone.

As time went on, the nerve pain got worse and worse. Her primary doctor was able to confirm she was dealing with TN but was unable to provide much insight on the diagnosis.

An MRI confirmed there was a blood vessel pressing on her trigeminal nerve. A cranial nerve that provides sensory and motor functions to the face.

If you’re hearing about TN for the first time here, let me tell you it’s one of the most painful conditions in the medical community. It’s known as the suicide disease because the pain is so excruciating people often take their lives.

In October of 2023, she took a turn for the worse and the pain began impacting her ability to eat, drink, talk, smile and complete daily activities.

Going from an extremely healthy and active person who hikes, bikes, does yoga and socializes often with her friends to someone who can’t even drink water without wincing in pain challenges you mentally in a way most will never understand.

A lot of you have come through sharing resources and information when I asked on my stories and that has been so helpful.

The hurdle now is trying to find practitioners who are knowledgeable and experienced in TN that can help her.

Unfortunately, the alternative therapies we are looking at to help her are not covered by insurance.

Cryotherapy

Functional chiropractic

Acupuncture

Cold laser therapy

Low level laser therapy

Functional medicine

Supplements

Possible surgery

The list goes on.

Help us find relief for my mom so she can get back to living her life, being a grandma, sewing, exercising and socializing without pain. I’m determined to figure this out.

If you feel included to donate, we appreciate anything and everything!

If you have any experience with TN or know of any resources or practitioners who specialize in trigeminal neuralgia, please share them with us!

Thank you so much!

Rachel