Tyler Decker - Tyler's Tribe - #WipeOutALS
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In July of 2020, our brother Tyler was diagnosed with ALS at the age of 26.
Born and raised in Carlsbad, California, Tyler’s always loved the ocean. By the age of three, he learned to surf, and since then, he’s never stopped, so we knew there was something wrong when he couldn’t get up on his board. While he can no longer surf, he still spends almost every day at the beach longing for the day he can get back on a board.
Follow Tyler on his journey to be the miracle and find a cure for ALS at www.tylerstribe.com.
In June, Tyler saw a general practitioner for his symptoms who ran a few tests. When those tests came back, she wanted Tyler to have a few MRIs done. And when she saw the alarming results from the muscle testing, she realized his case was out of her scope and referred Tyler to a neurologist. Even as the list of possible conditions started narrowing, we still never considered that Tyler’s diagnosis would be the worst-case scenario.
On July 15th, 2020, the neurologist ran an electromyogram that confirmed our greatest fear, and at that moment, our world stopped. At the young age of 26, our brother Tyler was diagnosed with ALS.
Amyotrophic Lateral Sclerosis, also known as Lou Gehrig’s disease, is a rare neurological disease. It affects nerve cells in the brain and spinal cord causing loss of voluntary muscle movement, making simple actions like chewing, walking, talking, and breathing increasingly difficult. ALS is a rapidly progressive disease with no known cause and no cure. Most patients live about 3 to 5 years after they experience their first signs of the disease, and only 1 in 10 people live with it for more than 10 years. There are clinical treatments out there that are proven to help with the progression of the disease. However, they are not yet approved by the FDA, and the cost for adequate treatment is around $300,000 a year.
We’re asking for your help to give Tyler a fighting chance. This outrageous price on life is unfortunate, yet a devastating reality for many ALS patients.
When this process started in June, we never thought we’d be where we are today. It’s still hard for us to wrap our heads around the fact that this diagnosis is reality. And while we will never understand why or how this happened, we are clinging to the hope for a cure…for all the families that this wretched disease affects, but especially for our brother Tyler.
Every penny from this GoFundMe account will go directly to Tyler’s treatment. If you have the means to donate, we sincerely appreciate your contribution. Thank you from the bottom of our hearts! We are grateful for all the support from you, our dear friends and family.
#WipeOutALS
Born and raised in Carlsbad, California, Tyler’s always loved the ocean. By the age of three, he learned to surf, and since then, he’s never stopped, so we knew there was something wrong when he couldn’t get up on his board. While he can no longer surf, he still spends almost every day at the beach longing for the day he can get back on a board.
Follow Tyler on his journey to be the miracle and find a cure for ALS at www.tylerstribe.com.
In June, Tyler saw a general practitioner for his symptoms who ran a few tests. When those tests came back, she wanted Tyler to have a few MRIs done. And when she saw the alarming results from the muscle testing, she realized his case was out of her scope and referred Tyler to a neurologist. Even as the list of possible conditions started narrowing, we still never considered that Tyler’s diagnosis would be the worst-case scenario.
On July 15th, 2020, the neurologist ran an electromyogram that confirmed our greatest fear, and at that moment, our world stopped. At the young age of 26, our brother Tyler was diagnosed with ALS.
Amyotrophic Lateral Sclerosis, also known as Lou Gehrig’s disease, is a rare neurological disease. It affects nerve cells in the brain and spinal cord causing loss of voluntary muscle movement, making simple actions like chewing, walking, talking, and breathing increasingly difficult. ALS is a rapidly progressive disease with no known cause and no cure. Most patients live about 3 to 5 years after they experience their first signs of the disease, and only 1 in 10 people live with it for more than 10 years. There are clinical treatments out there that are proven to help with the progression of the disease. However, they are not yet approved by the FDA, and the cost for adequate treatment is around $300,000 a year.
We’re asking for your help to give Tyler a fighting chance. This outrageous price on life is unfortunate, yet a devastating reality for many ALS patients.
When this process started in June, we never thought we’d be where we are today. It’s still hard for us to wrap our heads around the fact that this diagnosis is reality. And while we will never understand why or how this happened, we are clinging to the hope for a cure…for all the families that this wretched disease affects, but especially for our brother Tyler.
Every penny from this GoFundMe account will go directly to Tyler’s treatment. If you have the means to donate, we sincerely appreciate your contribution. Thank you from the bottom of our hearts! We are grateful for all the support from you, our dear friends and family.
#WipeOutALS
Fundraising team: Tyler's Tribe (2)
Meghan Decker
Organizer
Carlsbad, CA
Tyler Decker
Beneficiary
Michael Decker
Team member