Masons Craniosynostosis surgery

Hello everyone, my name is Chelsea and I am the mother of the sweetest little boy named Mason. Mason was diagnosed with Metopic craniosynostosis at 3 weeks old. For those who don’t know what Metopic craniosynostosis is, it is a rare birth defect of the metopic structure in the middle of the forehead that is fused together before birth. If not corrected the outcome can become catastrophic. A neurosurgeon removes the skull and dissects the bone from the brain and reconstructs the bones of the forehead. When Mason was about 5 months old when he started to have seizures due to pressure on his brain from his condition. Mason currently has pressure on his optic nerves and has the potential of becoming blind. Mason is seen on a very regular basis to monitor everything by his eye doctor and his cranio facial team at U of M in Ann Arbor, MI. His doctors have already informed me that due to his developmental delays that he will need an extensive amount of speech and occupational therapy after his surgery and possibly more due to his surgery delaying it even more.

Masons surgery is currently scheduled for October 1, 2021. Along with having this surgery and extensive after care and healing I will be unable to work from 6- 18 months. I am a single mom and I am the soul provider for Mason and I. During this time of being off work in result of Masons surgery I am asking for help with medical expenses and daily living expenses such as rent, utilities, gas, and ect. This has honestly been the hardest and most heart wrenching thing to ever go through. To see my sweet and innocent baby go through this is absolutely devastating as a mother.

I just wanted to thank everyone in advance for all the love, prayers, and support through this difficult time.

Sincerely, Mason and Chelsea