
Stay Healthy and Write a Memoir; Disability Awareness Month
Donation protected
Hello lovely humans!
I'm an 8x immunocompromised queer disabled human, trying to survive our post-apocalyptic healthcare industry...and currently failing.
Let's go all the way back to...2023, a year from which I am still recovering in every sense of the word:
It started with me losing my job (partially because I was the only one who couldn't safely get to work), and it ended with me jumping from hospital bed to...retail, so 8x anxious as hell, just now with a cane, and unable to eat food without immediately collapsing in pain/sleep.
A lot of people think that the moment you come back from a medical leave or get discharged from a hospital, that everything is A-OK now, and you are now fully healed:
And as anyone who's come back from a medical leave or gotten discharged from a hospital will confirm, that is not at all the case.
Our society doesn't understand "chronic."
Our economy doesn't understand "sick."
And our country's healthcare definitely doesn't understand the ebb and flow of "recovery."
So - I am trying to change it.
The biggest challenge with that isn't actually the how, because I already have a fully mapped-out, ready-to-go, tell-all-memoir that is going to change our society, and is (partially) on the books.
It's...hoooooow do I afford to make it?
If you're unfamiliar with Spoon Theory, I highly recommend looking it up, and in the meantime, no Ted Talk is needed to realize that a 3-hour commute each way for not full-time hours to try to make rent, afford absurdly pricey medicine, and oh hey maybe buy food, is going to be exhausting - if not outright unsuccessful.
...I have been unsuccessful. And I've been constantly trying to get back on the career horse (that bucked me off and then tried to stomp on me) even doing interviews covertly from my aforementioned hospital bed - and nothing has worked out.
More than anything, I'd love to be able to finish writing my book.
I believe in a mantra of "go where you're wanted," and the harder everything gets, the more I realize how badly we need this book and the reform I want to bring.
So in honor of Disability Awareness Month (which is also just every month for those of us with disabilities), I'm looking for any support in scraping by as I turn my words into a better reality.
If you can't afford to contribute right now, (first of all thank you for still reading this far. You are a wonderful person. Anyway) Please pass this along! We never know who may find it and me!
An agent? A politician? Maybe even a bored philanthropist who wants to reform the healthcare industry!
And it could be someone else out there, falling through the cracks in our system just as I did, and might realize that they're a little less alone than they had thought.
Let's change the world,
HWBS
Organizer

Heather Spencer
Organizer
New York, NY