
Help Isabella Fight -Disabled
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Hi, I’m Isabella. I’m writing this with a heavy heart and a lot of vulnerability. I’ve been living with multiple rare, disabling conditions for years—and now I’m in crisis. I’m unable to work, I have no safety net, and I’m fighting to survive while waiting for disability benefits I should have received long ago.
Despite worsening symptoms, my doctors have become unresponsive. I’ve reached out again and again for help, and I’ve been met with silence. It’s terrifying to feel this unseen and unheard—especially when I’m already at my most vulnerable. I'm doing everything I can to advocate for myself, but it’s exhausting, and I’m running out of options.
What I’m Living With
I live with several complex medical conditions that are misunderstood, under-researched, and often invisible—including:
POTS (Postural Orthostatic Tachycardia Syndrome): Affects the autonomic nervous system and makes standing up cause severe dizziness, heart palpitations, brain fog, nausea, and fatigue.
Ehlers-Danlos Syndrome (hEDS): A connective tissue disorder that causes joint instability, chronic pain, fatigue, and internal complications—yet is often dismissed by medical professionals.
Celiac Disease:
Not a food preference, but a serious autoimmune disorder. Even trace gluten exposure can cause weeks of debilitating symptoms and organ damage.
Cyclic Vomiting Syndrome (CVS): Causes unpredictable, intense episodes of nausea and vomiting that leave me incapacitated and unable even to keep down medications or water. These aren’t just symptoms. They are life-altering. And I’ve been left to navigate them without adequate care or support.
Why I’m in Crisis I’ve applied for disability benefits, but the process takes years—especially without legal help (which I’ve been unable to secure). I have no income, no savings, and no family or close friends who can consistently help. Even those who care about me struggle to understand how complex my situation is. I need help now just to survive, to afford food, medication, and transportation to appointments, while I wait for the support I should already have.
The Story Behind the Illness
My journey didn’t begin with illness it began with trauma. I grew up in an environment marked by mental illness, substance abuse, and neglect. Child Protective Services failed me and my siblings, and we were left to survive in conditions no child should endure. That trauma lives in my body. It shaped my nervous system, my immune responses, and my ability to function. The chronic illnesses I now live with are part of the same story. I eventually escaped that environment thanks to a single, unexpected act of kindness. But even in safer spaces, the trauma and illness came with me. I’ve spent years trying to heal, break generational cycles, and support my siblings—while quietly falling apart.
Why Your Help Matters Right now, I need support to make it through this chapter—to afford basic needs while I continue fighting for the benefits and care I deserve. Your donation can help with: Groceries and essentials Medications and medical transportation Legal aid for disability filing (if possible)
Even just sharing this page can make a huge difference.
The photo you see is how the world has always perceived me: calm, happy, healthy. But the reality is very different. I’m surviving day by day, doing everything I can to keep going.
Thank you for seeing me, hearing me, and supporting me.
With deep gratitude,
Isabella Brown
Organizer
Isabella Brown
Organizer
Pasadena, MD