Vein of Galen Malformation baby ❤️

Hi, My name is Taylor. My son has a rare malformation called the vein of Galen. I was diagnosed when I was 28 weeks pregnant. My son was born and spent his first 8 days of life in the NICU. He is becoming more symptomatic for heart failure. We thought we could wait it out for as long as possible but specialist says if he doesn’t have this procedure he won’t make it to 2 years of age. We go to 2 appointments a week. He’s been though so much & he’s been so strong. I recently found out our insurance won’t cover his procedure because the doc is out of state. Trying to raise $ for our travels, housing for our stay & maybe the procedure if I can’t get an appeal from my insurance before August 30th. Thanks to everyone who is willing to donate and help us. Google vein of Galen malformation for more insight.