Keep Simon Smiling

Simon Troy Beler was born on July 31, 2011. He was born with a heart defect called double outlet right ventricle. He was delivered three weeks early due to maternal hypertension.  He was kept in the NICU. At the tender age of three weeks Simon suffered a stroke. He required three surgeries to repair his heart. The first one was a shunt at 8 days old. The second one, the Glenn surgery was done at 7 months old. His most recent one, the Fontan surgery was done in August of 2014. He is currently dealing with possible complications called Plastic bronchitis and PLE. Right now he is in hospital in Saskatoon receiving super expensive medications via nebulizer. He won't be able to go home until he's approved for exceptional drug status so he can have these meds at home. 
Simon has come a long way and stolen the hearts of many with that courageous warm and winning smile. He is currently requiring more care than he has for quite a while. He requires one of his parents to be at home with him not just through this illness, but each illness because he's too fragile to stay with just anyone. Few parents are set up well enough to be able to take blocks of time off without pay. Mom's family leave has been used up already so the days she is spending with Simon are unpaid. In addition, there are expenses being incurred with each trip to the specialist and Simon would also benefit from a child's oximeter. 
My goal is to raise $2500 or more to put into an investment account. That way, they can use what they need immediately and the rest can earn money hopefully, for any future expenses.