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Adam's medical/funeral expenses
Donation protected
No one plans on having to deal with a sick child, let alone two. Three years ago we had our beautiful daughter, Lucy. When she was two months old Lucy went into heart failure and was diagnosed with Dilated cardiomyopathy. She spent 6 months at CHOP waiting for a heart transplant. On July 25 th, 2013 Lucy received her miracle heart! After a lot of genetic testing it was determined that she had contracted a virus in utero that led to her heart condition. Now she is a happy and healthy three year old. So we decided to try and have another baby. July 2015 we found out that we would be welcoming another baby in March 2016! We were so happy that God had given us another miracle, but very nervous. Everything has been going well being followed closely by a high risk doctor. At our 20 week anatomy scan, everything looked perfect and a perfect heart was beating. We also learned we would be having a boy, Adam Leo. Lucy was so excited! At 24 weeks we had a fetal echo to make sure his heart was a healthy one. Unfortunately, that was not our fate once again. We were referred to CHOP where they diagnosed Adam with restrictive cardiomyopathy, something they had not before seen in utero. We were advised to terminate the pregnancy because his chance of survival was very low and he would need a transplant at birth if he made it that far. We decided to leave it in God's hands and continue the pregnancy. At our follow up ultrasound at CHOP at 28 weeks it was discovered that Adam had gone into severe heart failure and had developed hydrops. We were told that he would not survive to birth. At this point we should only be concerned about me getting through the pregnancy. Since he developed Hydrops there is a high risk of me developing what is called the mirror syndrome, where I develop the same symptoms of him. So I am forced to take it easy, not work, continue to care for our disabled daughter and wait to see what happens with Adam. The medical bills from our daughter topped with the medical bills from this pregnancy and the unknown future of Adam has left us in a very difficult financial situation. Any help is greatly appreciated while we continue on this journey.
Organizer
Katie Brown
Organizer
Philadelphia, PA