Walk with DeCo: Raise Awareness & $$$ for VEDS

Learn about DeCo's story and follow his inspirational journey throughout the "Walk with DeCo" mission here - Walk With DeCo

FUNdraiser Turkey Trot on Thanksgiving, November 28th, 2024 - don't miss it! Trot with DeCo Fundraiser Event

The "Walk with DeCo" Podcast: A physical & spiritual journey in the face of adversity - Apple Podcast Link

The "Walk with DeCo" Mission Teaser Video (with narration) - https://youtu.be/Jw3w4k06YSo

DeCo's full story about Vascular EDS on YouTube in its entirety - https://youtu.be/HmxChx_LSno

DeCo's full story about Vascular EDS in Google Docs in its entirety - https://bit.ly/Mike-DeCoursey-Ehlers-Danlos-Story

Hi, my name is Mike, many of you know me as DeCo (pronounced “Deeko”). I have Vascular EDS, we call it VEDS (the EDS stands for Ehlers-Danlos Syndrome). It’s a rare and serious genetic connective tissue disorder. I did not find out that I had this condition until about 5 years ago, when I was 37 years old. My Dad died of an aortic dissection when I was 7 years old, so this news at 37 ended up explaining a 30 year mystery.

In January of 2021, completely out of the blue, I suffered an acute 3.5 inch dissection of my right iliac artery leading down to my femoral artery...within minutes my leg and foot started to go numb. I was rushed to the hospital and ended up having a 5-hour limb-saving and life-saving surgery. Crisis = Opportunity. I want to use this experience for great. I want to raise awareness and funds for the Vascular EDS community. People need to know about this condition and we need more money for continued research. 

The "Walk with DeCo" Mission was simple: Walk 4,000,000 steps and raise $40,000 for Vascular EDS in 2021. 

BUT THERE ARE STILL WAYS TO HELP...

Donate if you can, any amount helps! You’ll be helping me, my family, and all families impacted by this serious genetic condition.

Please help spread the word!

Also subscribe to my podcast and follow the journey!

The "Walk with DeCo" Podcast: A physical & spiritual journey in the face of adversity - Apple Podcast Link

THANK YOU FOR YOUR SUPPORT!

- DeCo