We wish to raise funds to fulfill Maggie's wishes

Hi, our names are Lyn and David. We are Maggie’s mum and dad.

This is very difficult for us to appeal publicly -- we wish we were not in this position, but as parents we will do whatever it takes for our child. 

We wish to raise funds to fulfill Maggie’s wishes and be able to fund treatment that is not available on the NHS.

First of all let me tell you about our daughter Margaret - ‘Maggie’ to her friends. 

Maggie is the most thoughtful, loving, selfless and kind girl. Always with a radiating smile on her face. Always with a positive outlook in life. She always thinks of others before herself. She loves her family and friends so much. Maggie is very outgoing, always on the go and she cares so much about her circle of friends. 

Maggie loves to travel, she always enjoys discovering new places, learning new cultures and loves tasting local cuisines. This is where her passion for Geography started. She studied geography A level in the hope of going to university, she always said she would like to be able to see the world as her job. 

Unfortunately, on 27Th May 2022, our life was turned upside down. Our family has changed forever. 

She was admitted to the intensive care unit in Nottingham, and later diagnosed with metastatic alveolar rhabdomyosarcoma with fusion positive. We were devastated, heartbroken beyond what everyone could imagine. But Maggie gave us courage, she endured 9 cycles of intensive chemotherapy, with unimaginable side effects but never ever complained. She always says, “I can do this”.  Her bravery, tenacity and determination give us the strength to keep fighting and to never lose hope. 

Just before Christmas last year, we were given the good news that her latest scan showed control of disease. She then started the maintenance chemo. But that was short lived. After two weeks of starting the new regime, Maggie developed a severe headache, and on 26th January the MRI scan showed that the cancer had spread to her brain. It was devastating. There are no words to describe how we all feel. We were told to prepare for the worst. Unfortunately, the recent diagnosis has significantly reduced Maggie’s survival chances. We were told it was terminal.  Alveolar Rhabdomyosarcoma fusion- positive is the most aggressive form of cancer in children. Unfortunately, the treatment available is very limited.

This is where we need you, our family, friends, strangers, anyone. Please help our daughter fulfill her dreams. Maggie would like to continue to explore the world and make precious memories.  

Maggie didn’t qualify for a trial drug, but she started on the standard relapse protocol chemotherapy on 6th Feb 2023. There is an option to self-fund the trial drug on top of her chemo regime. There is a small chance that this will be beneficial. That very little chance is what gives us hope. We will also explore any open-label trial that is available in the world. We know that in America there has been an open-label trial for positive fusion alveolar rhabdomyosarcoma. 

To everyone we are asking for your help, whatever amount you may have. I know this is a big ask but we are relying on the goodness of people, businesses, strangers, friends, and family. Please help share and circulate our page. Help our Maggie fulfill her dreams and receive the treatment she deserves.

Thank You. 

#OurMaggieNeedsYourHelp