Whitten John Carroll and The Carroll Family

Updated Post: Hi, my name is Renee, and I am Whitten's aunt. I set up this gofundme account to help a beautiful family who is going through a very difficult time right now. I will add some details below, but please watch this video from Caley as she introduces their story. https://www.facebook.com/caleycarroll/videos/361290489463439.

On June 24th, Whitten John was admitted to Children’s Hospital because he was excessively peeing. They discovered a tumor on his pituitary in his brain, 2 tumors on his skull and one on his hip. One week later the Carroll family had his official diagnosis: Langerhans Cell Histiocytosis (LCH) complicated by Arginine Vasopressin Deficiency (AVPD).

LCH is an immune disorder and cancer. Because it is an extremely rare disease, affecting only one in 100,000 people, it is underfunded and they’re currently is no cure.

AVPD is a result of the tumor on his pituitary where his hormone production has been affected. This is also a lifelong disease, and he will continue to be monitored for all of the different hormone functions of the pituitary throughout his life.

Whitten’s mom, Caley, stepped into the role of full-time caregiver upon his diagnosis and is no longer able to work, which is challenging as she was a primary contributor to the household income.

Whitten had 12 rounds of chemotherapy before his first rescans where they found 5 new tumors had developed in his ribs, humorous, femur and pubic bone. They sought out a specialist in Houston and moved him up to a more aggressive chemotherapy where they are in the hospital doing infusions for five days, followed by three weeks of recovery. This therapy will be repeated for 12 months. Over the entirety of this time, Caley will continue as a primary caregiver.

The incredible news is that after 10 infusions of the new chemotherapy, he showed, a dramatic improvement! He now has seven more months, and we pray he will be ringing the bell in October!

Although these diseases are incurable right now, Whitten John can go NAD - or no active disease. The recurrence rate for patients who use the same type of chemotherapy as him is only 15%!

I created this account to support them with their finances to ease their stress as their expenses have increased, yet their family income is in half. Thank you to anyone and everyone who has considered supporting them in any way! And your prayers are the greatest gift of all!!

Original Post: Hi, my name is Renee, and I am Whitten's aunt. I am setting up this gofundme account to help a beautiful family who is going through a very difficult time right now. I will add some details below, but please watch this video from Caley as it is her story to tell. https://www.facebook.com/caleycarroll/videos/361290489463439 Whitten John is a beautiful 1-year-old and is a very sick little man. He is currently at Children's hospital. He is suffering from a couple of things. On June 9th, the family started noticing issues with him not sleeping and peeing through his diapers and drinking excessively. After horrible tests and nights from hell, he has been diagnosed with diabetes insipidus. Here is some info on this if you want to educate yourself https://www.mayoclinic.org/diseases-conditions/diabetes-insipidus/symptoms-causes/syc-20351269 . They are continuing to run more tests to figure out why he has this, as there has to be more going on, and we have no idea how long he will be in the hospital. There has to be an underlying issue that is still to be determined. During this time John and Caley are not working and medical bills are piling up. Any help will be amazing.