Worthy of medical testing & treatment
Donation protected
Hi Deb here!
I have 30 days to get MRI’s done or my Dr. will release me as a patient. I am poor low middle class, guess I am not worthy enough of a human being to get seen as an out of pocket cash payee. I need Mammograms for Cancer screening, 3 MRIs and they want me to continue Neuromuscular Therapy, get my 11 prescriptions and then get ablations/injections. All knowing I have no health insurance. Not giving a crap that I have no health insurance. I get the Neuromuscular Therapy and see the Dr for her to write my RXs every month but do not have the means for the imaging.
Been waiting 5 yrs. as of Feb 19th for my Social Security Disability Insurance to get approved. I worked for 43 years until I literally could not work any longer. They hope I give up or die first before they approve me. I have jumped through so many time consuming, soul crushing, barrier creating hoops they have thrown at me along the way. I am still in the appeals process. I paid taxes for 43 years into this SSD Insurance. Yes, I have a lawyer. The gov is not only NOT approving people they’re finding ways to kick people who have already been found disabled.
While they drag their feet waiting for me to give up or die, my conditions have worsened exponentially. I have *NO* medical insurance so everything I pay for is out of pocket like. I either EAT or get my medications depending on the month. I have to try and “stretch” both. I literally can only afford one Dr. a month and they hold THAT against me (I SHOULD be seeing my rheumatologist. I SHOULD be seeing someone for my severe depression. I SHOULD get the Mammograms imaging my Dr. ordered for my Cancer screening for the lumps in my breasts, but again, imaging costs money and I have called around we DO NOT qualify for ANY assistance in payment, I did inquire/apply. The Mammograms I SHOULD be getting and the 2 MRI’s that were just ordered for me by my Dr., but THAT is $1350.00 out of pocket!!!
You see, I am married, and my husband works/has an income, so we DO NOT qualify for ANY free state or federal assistance such as Medicaid, or any charities that help with Dr’s, rent or utilities. We are slightly above the poverty guidelines every agency uses for charities/Medicaid/assistance. Some people have suggested divorce or just lie and cheat the system like thousands of people do, but after 34 yrs. of marriage and being brought up not to cheat and lie I just can’t do it.
If I don't get my therapies & treatments or all my prescriptions, they call me either "non-compliant" or infer I must not need them. I just don't have the money and they're using that AGAINST ME!! I get treated like I'm sub-human no matter what I do and THAT makes me feel so much WORSE physically, mentally and emotionally and makes my conditions worse.
I’m told by my pain Dr. to get MRI’s Imaging done or they will “fire me”. I’ve been going to them for 4 years, but I have been in pain management for 15 yrs. My last MRI was just a few years ago. I have Degenerative Disc Disease so whatever is happening with my vertebrae you can be assured it’s NOT growing BACK!! {For Pete’s sake!!} I have 20+ diagnosis many of which have NO CURE so it’s all about maintenance & keeping me as comfortable & functional as possible. Theres only so many injections & nerve blocks one can get per year & over a lifetime. Some of my other conditions are Rheumatoid Arthritis, Osteoarthritis, Osteomyelitis, Complex Regional Pain Syndrome- AKA: The Suicide Disease-formerly known as RSD, Fibromyalgia, Raynaud’s Syndrome, Tinnitus, Tremors, severe chronic Migraines (since early childhood), I have bone spurs in different places around my body that are painful because they have grown so much and I don’t have insurance for surgery to remove them. I could go on, but you get it, I’m in debilitating pain much of the day every day.
Thanks for listening and if you are able to thank you for helping and/or sharing!!! It’s very, very difficult to be in this position and appreciate any assistance offered along my fight for life!!
Organizer
Debra Carter
Organizer
Glendale, AZ