Cancer sucks! Please help our family.
Donation protected
Every little bit will help. Or just share if you can. We have to set aside our pride to ask for help. It's not something we take lightly.
UPDATE (2/1/2024)
Short version -
Sean needs a bone marrow transplant. 2 months of immunotherapy and then 2 months of daily chemo leading up to a transplant. Then 2-3 months for the new immune system (from the transplant) to grow and do its thing and hopefully get him healthy again.
Long version-
To say it frankly, today was the worst day ever for us. Sean had done his last treatment, gotten his "final" scan and we were waiting for the doctors to go over the results with us. That appointment was last Wednesday and we didn't get super great news. Still some evidence of disease and there needed to be some more things done. So our lovely doctor sent us to Hopkins for the next steps and a second opinion. He left something out though, the fact that he wasn't better after the regular treatment was a very very bad thing. Turns out Sean really did get beat with that unlucky stick guys. It looks like his cancer is the aggressive drug resistant kind. It is exactly as scary as it sounds. Today we got A LOT of information thrown at us. And thanks again to our lovely kaiser doctor, our jaws about hit the floor when the Hopkins doc casually said "so your cancer has gotten worse" we weren't expecting that. We were of the mind set that he would need something to kinda clean things up and then he would be fine. That is definitely not the case and that reality is very much front and center for us after today. Hopkins is going to have to basically rediagnose him which they say is standard when getting a new patient. I'm all for it so we can get things right this time. After that he will need "salvage therapy" or immunotherapy. For about 2 months. AND THEN he will need daily yes I said DAILY chemo for 2 months after that. All of this leading up to a bone marrow transplant. Oh and after that (it's gonna hurt I've been told) he has to wait for his brand new immune system to grow and work its magic. And even if EVERYTHING goes perfectly its only 90% odds. That sounds great unless you're us and we're just told you were also 90% likely to be in remission after the chemo he already did. So I am being cautiously optimistic because I have no other choice. It's optimism or never getting out of bed.
So yeah, that's where we are at. Donate if you can. Pray if you can't. We're gonna need it.
Organizer
Christina Kinsley
Organizer
Baltimore, MD