Help 1 year old Shivanshi Defeat SMA

Dear friends, family, and compassionate strangers,

This fundraiser is created by Dr Paddy Ramanathan [ Managing Director, Western Medical Group] and Navdeep Singh [ Shivanshi's Father childhood friend, a family] from Australia to raise a fund for 1 year old Shivanshi's treatment.

We are reaching out to you today with a heartfelt plea for help and support for our beloved 15-month-old daughter Shivanshi who has been diagnosed with Spinal Muscular Atrophy (SMA) Type 2.

At 11 months old, on June 28th, 2023, genetic test results confirmed that Shivanshi has SMA Type 2.

What is Spinal Muscular Atrophy (SMA)?

This is a rare genetic progressive neuromuscular condition that weakens the muscles over time, affecting the ability to sit, crawl, or walk. Without intervention, her condition will worsen, impacting her swallowing, and breathing and can even be fatal. It shattered us and the whole family, trying to reason out ‘How is this even possible?’. We are still going through the coping process while trying to stay strong and learn more about SMA each day. Since then we have visited multiple doctors for multiple tests to support Shivanshi.

What is the cure?

We have discovered a ray of hope in the form of Zolgensma, a revolutionary gene therapy that could potentially change Shivanshi's life forever. This one-time treatment halts the progression of the disease and restores motor neuron function. This has already transformed the lives of many other children, allowing them to reach important milestones and achieve a greater quality of life.

The monetary barrier?

Unfortunately, Zolgesma comes at the astronomical price of A$3.3 million ($2.1M USD or 16 Cr Indian Rs] and is beyond the means of one family alone. For it to be safe and effective, Shivanshi must undergo treatment BEFORE she turns 2 years old. She is in a race against time. Every day we delay from now will just weaken her muscles and will cause irreversible motor neuron damage that can be life-threatening.

The challenge is to Gather money within a short period, and you all can help.

Your generosity and compassion can make a world of difference for Shivanshi. Every contribution, no matter how small, brings us closer to our goal. Here's how you can help:

Donate: Contribute what you can. Every dollar counts, and your contribution will directly fund Shivanshi's life-changing treatment.

Share: Spread the word about Shivanshi's story and our crowdfunding campaign through your social media networks, emails, and word of mouth. The more people who know about our cause, the greater our chances of reaching our target.

This goFundMe campaign is based in Australia and was created to achieve a smaller goal.

Other fundraising campaigns are listed in the below link for you to follow over all progress.

- Linktree https://linktr.ee/shivanshi_fights_sma?utm_source=linktree_profile_share&ltsid=7ef04982-043e-419d-831f-468e7d6f4959

Know more about shivanshi on her Instagram @shivanshi_fights_sma

Email us at [email redacted]

Thanking everyone,

Akash and Aarti (Parents)

Navdeep (Uncle) managing Crowdfund in Australia