Grayson’s Fight
Donation protected
Almost 2 months ago Ariel noticed something was wrong with her 4 year old son, Grayson when she went to wake him up one Saturday afternoon and he was difficult to arouse. Since then she has been in the fight of her life for her sons health and it’s far from over. A CBC done by his primary care physician reveled severe abnormalities. The time between that Saturday and now she has had to take Grayson to specialists all over the state of Florida and been in and out of ERs, Nemours children’s hospital and the Cleveland clinic searching for answers as Graysons symptoms worsened.
Grayson has had every test possible repeated multiple times in an attempt to find another reason. Their week at Nemours ended with a 3 day eeg, sedated MRI and bone marrow biopsy and aspiration that revealed that the disease has now spread to his central nervous system, skin and lower airway.
When everything else was ruled out the only option left on the table is HES: Hypereosinophilic Syndrome, an extremely rare blood disease typically only ever seen in people over 60. There is no known cure.
HES requires a full 6 months of the disease before confirmation and treatment can begin because of how rare it is. She’s two months in and has 4 more to go.
Graysons current secondary diagnosis’:
Severe Hypereosinophilia
Anisopoikilocytosis
Syncopal episodes
leukoerythroblastic reactions
Seizures
Lower airway disease
Skin eruption
Normocytic anemia
leukocytosis
The time between now and March will be filled with more doctors and hospitals as they hopefully travel back to Nemours this coming week. 2 months ago she had what she thought was a perfectly healthy baby boy. Life could have never prepared her for what has occurred and what is still to come. HES is a disease that causes multi system and multi organ failure. It is a fatal disease.
While she spends the next few months continuing to search for answers, get Grayson the care he needs, and still be a mom to her daughter Skylee she needs our help. Any pressure we can take off of her so she can focus on him will mean the world to her.
Grayson has had every test possible repeated multiple times in an attempt to find another reason. Their week at Nemours ended with a 3 day eeg, sedated MRI and bone marrow biopsy and aspiration that revealed that the disease has now spread to his central nervous system, skin and lower airway.
When everything else was ruled out the only option left on the table is HES: Hypereosinophilic Syndrome, an extremely rare blood disease typically only ever seen in people over 60. There is no known cure.
HES requires a full 6 months of the disease before confirmation and treatment can begin because of how rare it is. She’s two months in and has 4 more to go.
Graysons current secondary diagnosis’:
Severe Hypereosinophilia
Anisopoikilocytosis
Syncopal episodes
leukoerythroblastic reactions
Seizures
Lower airway disease
Skin eruption
Normocytic anemia
leukocytosis
The time between now and March will be filled with more doctors and hospitals as they hopefully travel back to Nemours this coming week. 2 months ago she had what she thought was a perfectly healthy baby boy. Life could have never prepared her for what has occurred and what is still to come. HES is a disease that causes multi system and multi organ failure. It is a fatal disease.
While she spends the next few months continuing to search for answers, get Grayson the care he needs, and still be a mom to her daughter Skylee she needs our help. Any pressure we can take off of her so she can focus on him will mean the world to her.
Organizer and beneficiary
Mondie Leigh
Organizer
Port Saint Lucie, FL
Ariel Wallace
Beneficiary