Neil and Amanda's son Jack
Donation protected
My close friends Neil and Amanda Cassidy need our Financial help! Their little guy (Jack age 2) has a Langerhan Cell Histiocytosis (LCH). You can learn more about it here https://en.m.wikipedia.org/wiki/Langerhans_cell_histiocytosis
The treatment for this disease is very expensive. Please read the story below and donate what you can.
Here is their story:
On November 21st Jack woke up with a swollen left cheek. He had fallen on a toy box at daycare the day before and we thought that was the culprit to the swollen cheek. After three weeks of multiple doctor visits and a misdiagnosed fractured jaw, Jack was sent to the er for a ct scan. Ultimately the scan revealed a mass. Jack was admitted to the hospital that night and had a biopsy on the mass the next day (Friday, December 11th). We were told that it was a tumor and that the biopsy was sent to the lab for further testing.
After three long days we received the call that the tumor is Langerhan Cell Histiocytosis (LCH). You can learn more about it here https://en.m.wikipedia.org/wiki/Langerhans_cell_histiocytosis
On Tuesday, December 22nd we met with pediatric oncology doctors to find out the treatment for LCH. It was determined that Jack will fight this disease by receiving 6 weeks of chemotherapy and by taking steroids three times daily. Chemo is a hard word to swallow but knowing that it will shrink or diminish the tumor makes it easier to swallow. We are ready to help Jack fight this disease or kick the tumor's butt as he says!
Later that evening we took Addison, Molly and Jack to Newts for dinner and told them that Jack was sick and would need medication and many trips to the hospital. It was hard telling them. We wanted to protect them from this. We have encouraged them to ask as many questions as they have and we talk about it with them. We are also trying to be aware of spending time with them and doing fun things. Neil and I also had to make the decision whether to still go on the surprise Mexico trip that he had planned for us to go on. There was no way that we could leave Jack so we chose to not go.
On Tuesday, December 29th Jack had surgery to have his port put into place. The port will allow Jack to get his weekly blood draws and chemo treatments done all with one poke.
He also received his first round of chemo and he started the steroids as well. It was hard to start the treatment but we were also ready to get this going for him. Not going to lie, it was pretty emotional watching the chemo go into him.
We are one treatment down, five more to go. He was a champ! We are so proud of him! This tumor picked the wrong kid!
That brings us to today. Jack had a good day. We hung out at home and he has been playing with all of his new toys that he got for Christmas.
He is on prednisone three times daily and three other medications. He has been doing well with taking them and each time he says my bump is going away after he takes them! The doctors have encouraged us to keep life as normal as possible for the whole family. Although Neil took the girls to the mall today to shop which is very out of the ordinary! :)
The treatment for this disease is very expensive. Please read the story below and donate what you can.
Here is their story:
On November 21st Jack woke up with a swollen left cheek. He had fallen on a toy box at daycare the day before and we thought that was the culprit to the swollen cheek. After three weeks of multiple doctor visits and a misdiagnosed fractured jaw, Jack was sent to the er for a ct scan. Ultimately the scan revealed a mass. Jack was admitted to the hospital that night and had a biopsy on the mass the next day (Friday, December 11th). We were told that it was a tumor and that the biopsy was sent to the lab for further testing.
After three long days we received the call that the tumor is Langerhan Cell Histiocytosis (LCH). You can learn more about it here https://en.m.wikipedia.org/wiki/Langerhans_cell_histiocytosis
On Tuesday, December 22nd we met with pediatric oncology doctors to find out the treatment for LCH. It was determined that Jack will fight this disease by receiving 6 weeks of chemotherapy and by taking steroids three times daily. Chemo is a hard word to swallow but knowing that it will shrink or diminish the tumor makes it easier to swallow. We are ready to help Jack fight this disease or kick the tumor's butt as he says!
Later that evening we took Addison, Molly and Jack to Newts for dinner and told them that Jack was sick and would need medication and many trips to the hospital. It was hard telling them. We wanted to protect them from this. We have encouraged them to ask as many questions as they have and we talk about it with them. We are also trying to be aware of spending time with them and doing fun things. Neil and I also had to make the decision whether to still go on the surprise Mexico trip that he had planned for us to go on. There was no way that we could leave Jack so we chose to not go.
On Tuesday, December 29th Jack had surgery to have his port put into place. The port will allow Jack to get his weekly blood draws and chemo treatments done all with one poke.
He also received his first round of chemo and he started the steroids as well. It was hard to start the treatment but we were also ready to get this going for him. Not going to lie, it was pretty emotional watching the chemo go into him.
We are one treatment down, five more to go. He was a champ! We are so proud of him! This tumor picked the wrong kid!
That brings us to today. Jack had a good day. We hung out at home and he has been playing with all of his new toys that he got for Christmas.
He is on prednisone three times daily and three other medications. He has been doing well with taking them and each time he says my bump is going away after he takes them! The doctors have encouraged us to keep life as normal as possible for the whole family. Although Neil took the girls to the mall today to shop which is very out of the ordinary! :)
Organizer and beneficiary
Kevin Lowery
Organizer
Rochester, MN
Neil Cassidy
Beneficiary