A SafetySleeper and Fence for Kyle
Donation protected
Hi! My name is Kyle I’m a lot like any other three-year-old you know. I live with my Mommy and Daddy, my two older sisters and my dog Mr. Peabody. I love to play outside. I also love to play with Hot Wheels, puzzles, and with my family. I love when Mommy or Daddy read me stories. When I get to watch television, I love watching Thomas the Tank Engine, Cars, and Chuggington. I already know my colors, letters, and numbers. I love meeting new people, making new friends, laughing and smiling. My favorite things are peanut butter sandwiches, pizza, bananas, and cookies, but I don’t like green vegetables!! I’m a very determined little boy; when I set my mind to something I just won’t give up. You might think I’m like any other three-year-old… but I’m not.
See, there are some things that are a little harder for me to do than other kids. When I was born; I was born without my Corpus Callosum. That’s the part of my brain that normally connects the left and right sides. My doctor says that it’s called Complete Agenesis of the Corpus Callosum, or C-ACC. My Daddy says that just means that signals trying to get from one side of my brain to the other have to take the country roads instead of the interstate. All I know is it makes me have a hard time doing things like using a spoon, drawing, jumping, running, and pedaling my tricycle. It also makes it very hard for me to talk, so most of the time I’m non-verbal, but I do understand when people talk to me, I just can’t get my words to come out right. Sometimes I get very frustrated when I know what I want but can’t seem to make the people around me understand. The words are jumbled and my hands have a hard time making the right signs. I just wish I could make people understand me.
More than anything I like to explore the world around me. I like to touch and taste everything! Because of my different brain, someone always has to be right there with me because; as my therapists say “I’m under sensitive.”. I don’t feel or process pain like other people do. So I'm not afraid of many things. I can get hurt really badly and not even cry. Not too long ago, I started having seizures. Seizures are one thing that scare me, because when I have them, I don’t know what’s happening to me. When the scary seizure is over my muscles don’t do what I want them to do for a few days, and if I have a lot of seizures too close together I lose the few words I’ve fought so hard to learn
.
My Mommy and Daddy took me to see a new doctor. She was really nice, and we played together for a few hours in her office while Mommy wrote on LOTS of papers. Not long after we saw her, I overheard my Mommy and Daddy say that she sent them a letter, and it said I have Autism. Daddy explained to me that this means I see the world a little differently than most people. Mommy says I'm Mac in a PC world. It also means I get distracted easily, and I wander from place to place. That scares Mommy and Daddy because I don't understand things could hurt me, like cars. I don’t get to play outside as much as I want to because we live on a busy road, and it takes two people to watch me since we don’t have a fence to help keep me safe.
I’m lucky though. I have so many people around me that love me and want to help me. My Mommy even quit her job so she could stay home and take me to all of my doctor and therapy appointments. Mommy works really hard to make sure I eat what I should, chasing me around all day, and she helps me by doing home therapy with me. Daddy works really hard too, in fact, he works two jobs. I know Daddy does what he has to for our family to have all that we need, pay for my medicine and to make sure I can keep seeing my speech, occupational and physical therapists, pediatrician, neurologist and psychologist. Mommy and Daddy do so much for me, but I wish I could have a fence around my yard so it would be safer for me to play outside, and a Safety Sleeper so I can sleep in a big boy bed instead of my crib. Mommy and Daddy say that our insurance won’t pay for these things. They are just too expensive and my family just doesn’t have the extra money to pay for them. So Mommy and Daddy said I could write this story for their friends and family and ask if they could help me. If you can, would you donate some funds to help me get a fence around my yard and a Safety Sleeper? I’d really love to play outside safely, and sleep in a big boy bed. My Mommy and Daddy said they would post this and ask everyone they know to see if we could find the money since insurance doesn't pay for these things. I thank you all so much for reading my story, and even if you can’t contribute money to help me, maybe you could share with your friends and ask them to read my story too.
If you would like more information about Agenesis of the Corpus Callosum:
http://www.nodcc.org
If you would like more information about Autism:
http://www.autismspeaks.org
You can read more about the Saftey Sleeper here:
http://thesafetysleeper.com/index.html
See, there are some things that are a little harder for me to do than other kids. When I was born; I was born without my Corpus Callosum. That’s the part of my brain that normally connects the left and right sides. My doctor says that it’s called Complete Agenesis of the Corpus Callosum, or C-ACC. My Daddy says that just means that signals trying to get from one side of my brain to the other have to take the country roads instead of the interstate. All I know is it makes me have a hard time doing things like using a spoon, drawing, jumping, running, and pedaling my tricycle. It also makes it very hard for me to talk, so most of the time I’m non-verbal, but I do understand when people talk to me, I just can’t get my words to come out right. Sometimes I get very frustrated when I know what I want but can’t seem to make the people around me understand. The words are jumbled and my hands have a hard time making the right signs. I just wish I could make people understand me.
More than anything I like to explore the world around me. I like to touch and taste everything! Because of my different brain, someone always has to be right there with me because; as my therapists say “I’m under sensitive.”. I don’t feel or process pain like other people do. So I'm not afraid of many things. I can get hurt really badly and not even cry. Not too long ago, I started having seizures. Seizures are one thing that scare me, because when I have them, I don’t know what’s happening to me. When the scary seizure is over my muscles don’t do what I want them to do for a few days, and if I have a lot of seizures too close together I lose the few words I’ve fought so hard to learn
.
My Mommy and Daddy took me to see a new doctor. She was really nice, and we played together for a few hours in her office while Mommy wrote on LOTS of papers. Not long after we saw her, I overheard my Mommy and Daddy say that she sent them a letter, and it said I have Autism. Daddy explained to me that this means I see the world a little differently than most people. Mommy says I'm Mac in a PC world. It also means I get distracted easily, and I wander from place to place. That scares Mommy and Daddy because I don't understand things could hurt me, like cars. I don’t get to play outside as much as I want to because we live on a busy road, and it takes two people to watch me since we don’t have a fence to help keep me safe.
I’m lucky though. I have so many people around me that love me and want to help me. My Mommy even quit her job so she could stay home and take me to all of my doctor and therapy appointments. Mommy works really hard to make sure I eat what I should, chasing me around all day, and she helps me by doing home therapy with me. Daddy works really hard too, in fact, he works two jobs. I know Daddy does what he has to for our family to have all that we need, pay for my medicine and to make sure I can keep seeing my speech, occupational and physical therapists, pediatrician, neurologist and psychologist. Mommy and Daddy do so much for me, but I wish I could have a fence around my yard so it would be safer for me to play outside, and a Safety Sleeper so I can sleep in a big boy bed instead of my crib. Mommy and Daddy say that our insurance won’t pay for these things. They are just too expensive and my family just doesn’t have the extra money to pay for them. So Mommy and Daddy said I could write this story for their friends and family and ask if they could help me. If you can, would you donate some funds to help me get a fence around my yard and a Safety Sleeper? I’d really love to play outside safely, and sleep in a big boy bed. My Mommy and Daddy said they would post this and ask everyone they know to see if we could find the money since insurance doesn't pay for these things. I thank you all so much for reading my story, and even if you can’t contribute money to help me, maybe you could share with your friends and ask them to read my story too.
If you would like more information about Agenesis of the Corpus Callosum:
http://www.nodcc.org
If you would like more information about Autism:
http://www.autismspeaks.org
You can read more about the Saftey Sleeper here:
http://thesafetysleeper.com/index.html
Organizer
Bryan Lumpkin
Organizer
Valley, AL