Funds for Blaine

*****This go fund me is a continuous fundraising platform I use for any all events, and medical bills, etc. Please understand the money that has been raised this far, has been used for all causes to Blaine. There is no money that is held in this account*****Blaine Matthew.He is a 9 year old little boy who lives life with his family to the fullest.  He has an older and younger sister. So that makes him the middle child, which he doesn't really mind. (He is actually the most spoiled of the bunch )Hope is is an anchor for the soul Hebrews 6:19Blaine does not have nursing care, so that made me, (mom) his nurse. His caretaker. His receptionist. His hairstylist. His chef. His refill supply lady. All the labels you can think of.  My biggest role in Blaines life is being his advocate. His voice when he cannot speak. His ears when he cannot hear.His eyes when he cannot see. I would do and give anything for my son. Here is is some info on Blaines disease:Blaine has Krabbe Leukodsytrophy. A fatal disease that affects the central and peripheral nervous systems.  This rare genetic disease affects 1 in 100,000. There are different onsets of the disease based on age. He has the late infantile version. It's a very confusing disease, but that just means with the speed of of his progression and his age. He may live until the age of 6 based on an educated guess. The doctor he sees is incredible and she truly cares to follow each of the kids she treats very thoroughly. Blaine can still see, hear, and enjoy things. Blaine is still an eight year old boy, and I never let him feel any different. He goes everywhere with me. And I go everywhere with him. Heart and soul.