Robinow Syndrome Medical Fund

We are the Robinow Syndrome Foundation, We're a 501(c)3 non-profit organization for a rare genetic syndrome. 100% of the funds will provide assistance to families and children with Robinow Syndrome for uncovered medical expenses, travel and lodging.

Babies born with Robinow Syndrome can present with complex medical needs. Specialized treatment often requires many families to travel in order to recieve care by specialist that have experience with this rare condition. 

When specialized treatments are outside the families medical plan, or have travel outside the state they reside,  or from another country, comes with the stress of being completely uncovered due to limitations by the medical plans coverage. 

Often families are faced with long term medical stays for treatment away from home. This adds a financial burden for transporation and lodging for many. 

Our goal is to help ease these burdens to families.