Help me stand on my own two feet ♿
Donation protected
Hi, I'm Debbie, Jay's fiancé, to tell you how you can massively, make our lives better and, if you walk, a bit like yours.
Jay was working when he contracted Chickenpox which triggered his Multiple Sclerosis which decimated his abilities to do anything esp since the scars on his spinal cord t5/6left him with a left sided weakness and an inability to walk. In his early 40's Jay found himself in a nursing home.
We met online and met up and it was ' Love at first sight ' , no apologies for the cheesiness Jay was lucky enough to get an adapted flat from ISOS and we started our life together.
Jay has hypertonal stiffness and is in excruciating pain everyday when he spasms and continual back pain due to being in the same position every waking moment. The last option was to have a Baclophen pump fitted so drugs go straight to his spine, all other options have been explored.
What we didn't expect was a Hobson's choice..... To be pain/spasm free the pump would be turned so high that it would effectively paralyse Jay's legs and his fleeting ability to safely stand in a physio's standing frame. The alternative is that he keeps his ability to stand but still be in pain. There are no other options and have reached a stalemate.
Jay chose to have the lower level of Baclophen and unfortunately, the pain. As he has secondary progressive form of MS he will not get better but maintaining his abilities is key.
The powerchair Jay has been given fixes him in a seated position for his waking and powernap time.
To help Jay get dressed power assisted leg function would prevent him getting an MS hug, a painful ache in the chest when you lean down.
A full recline function will allow Jay to have a powernap which he needs once or twice a day, whether he wants it or not.
The most amazing function is to be able to stand, and move on a flat surface. This helps bone strength, toileting, prevents contractures, circulation and on a purely selfish note, a cuddle from my 5'11 man.
Jay feels guilty asking for help as " there are people worse off than
He regularly raises funds and awareness for MS with the MS Society in and around Newcastle.
Jay asked me to marry him on April 1st ( yes, really) and wants to say his vows standing , like you and me. Jay has a heart and courage of a lion but needs your support to get him on his feet. Thank you all
Debbie
Jay was working when he contracted Chickenpox which triggered his Multiple Sclerosis which decimated his abilities to do anything esp since the scars on his spinal cord t5/6left him with a left sided weakness and an inability to walk. In his early 40's Jay found himself in a nursing home.
We met online and met up and it was ' Love at first sight ' , no apologies for the cheesiness Jay was lucky enough to get an adapted flat from ISOS and we started our life together.
Jay has hypertonal stiffness and is in excruciating pain everyday when he spasms and continual back pain due to being in the same position every waking moment. The last option was to have a Baclophen pump fitted so drugs go straight to his spine, all other options have been explored.
What we didn't expect was a Hobson's choice..... To be pain/spasm free the pump would be turned so high that it would effectively paralyse Jay's legs and his fleeting ability to safely stand in a physio's standing frame. The alternative is that he keeps his ability to stand but still be in pain. There are no other options and have reached a stalemate.
Jay chose to have the lower level of Baclophen and unfortunately, the pain. As he has secondary progressive form of MS he will not get better but maintaining his abilities is key.
The powerchair Jay has been given fixes him in a seated position for his waking and powernap time.
To help Jay get dressed power assisted leg function would prevent him getting an MS hug, a painful ache in the chest when you lean down.
A full recline function will allow Jay to have a powernap which he needs once or twice a day, whether he wants it or not.
The most amazing function is to be able to stand, and move on a flat surface. This helps bone strength, toileting, prevents contractures, circulation and on a purely selfish note, a cuddle from my 5'11 man.
Jay feels guilty asking for help as " there are people worse off than
He regularly raises funds and awareness for MS with the MS Society in and around Newcastle.
Jay asked me to marry him on April 1st ( yes, really) and wants to say his vows standing , like you and me. Jay has a heart and courage of a lion but needs your support to get him on his feet. Thank you all
Debbie
Organizer
Deb Fisk
Organizer