Wheelchair van for Isa
Donation protected
I hope everybody takes a minute to read this about my little Angel Isa.
Isa was born 5th September 2007.
The day I became the happiest mother in the world. I had hopes dreams, plans as does every mother with her child.
Two months went by when I thought everything was normal, although somewhere inside me, deep down inside, I had a bad feeling that something was wrong and that's when my journey began, that's when my life came crashing down, my world just shattered, I felt crushed. It all turned from an amazing dream to a horrible nightmare praying I would wake up from it but I never did this was real, this was the life that was chosen for me.
From visits to gps to specialists and the list goes on and on. I was in a world where I felt lost and I was running around desperate for answers. We couldn't find a diagnosis, when bloods and tests and MRI's all coming back clear. This didn't fit, nothing fit, my baby was regressing day after day, he turned limp and floppy and unable to hold up his own head anymore. I wasn't going to take No for an answer something is not right!
Then one day my appointment finally arrived the one I've been waiting for so nervous but yet so curious for answers, we walked in to the paediatricians room and he knew it, he knew it all, my baby was suffering hundreds of seizure a day, that would look like simple baby startles but these weren't, every seizure was doing him more and more damage, until he got to the stage where he could no longer move much at all. Too much brain damage , from too many seizures in such a little baby.
The result.....permanent brain damage
Today my baby is 8 years young, turning 9 in September. We never really got a diagnosis but what we do know about his condition up until this day, is that he suffers from epilepsy, West syndrome, global developmental delays, cortical visual impairment and microcephaly (small brain)
These conditions have left my baby severely disabled, with low muscle tone, unable to walk, talk, see or eat orally.
Isa is fed via a peg into his stomach four times a day and also on medication three times a day .
Isa is currently weighing 25 kilos and has become far too heavy for me to lift him. Going to hospital appointments is difficult as I do not have a wheelchair accessible vehicle.
It has come to a stage where I have done damage to my left shoulder, which has left me living in chronic pain making my every day routines more difficult, as I have to pick up the wheelchair and put it into the boot of my car and pick Isa up and put him in the car seat .
For the safety of my son and myself, I need to purchase a wheelchair accessible vehicle as soon as possible with a wheelchair accessible customised family vehicle my husband, children and I will be able to travel in one car as a family, making it easier to take him to appointments and regular outings.
Isa's siblings Jibreel, Zayne and Aaliyah have also been affected by this situation as we can not have normal family outings. Most of the time we have to be home for his feeds and medications and when he is unewell. Physically and emotionally, this has been a very hard journey for all of us and any kind of help big or small would be a relief to our family.
We need the support of our local community any contribution is greatly appreciated.
Isa was born 5th September 2007.
The day I became the happiest mother in the world. I had hopes dreams, plans as does every mother with her child.
Two months went by when I thought everything was normal, although somewhere inside me, deep down inside, I had a bad feeling that something was wrong and that's when my journey began, that's when my life came crashing down, my world just shattered, I felt crushed. It all turned from an amazing dream to a horrible nightmare praying I would wake up from it but I never did this was real, this was the life that was chosen for me.
From visits to gps to specialists and the list goes on and on. I was in a world where I felt lost and I was running around desperate for answers. We couldn't find a diagnosis, when bloods and tests and MRI's all coming back clear. This didn't fit, nothing fit, my baby was regressing day after day, he turned limp and floppy and unable to hold up his own head anymore. I wasn't going to take No for an answer something is not right!
Then one day my appointment finally arrived the one I've been waiting for so nervous but yet so curious for answers, we walked in to the paediatricians room and he knew it, he knew it all, my baby was suffering hundreds of seizure a day, that would look like simple baby startles but these weren't, every seizure was doing him more and more damage, until he got to the stage where he could no longer move much at all. Too much brain damage , from too many seizures in such a little baby.
The result.....permanent brain damage
Today my baby is 8 years young, turning 9 in September. We never really got a diagnosis but what we do know about his condition up until this day, is that he suffers from epilepsy, West syndrome, global developmental delays, cortical visual impairment and microcephaly (small brain)
These conditions have left my baby severely disabled, with low muscle tone, unable to walk, talk, see or eat orally.
Isa is fed via a peg into his stomach four times a day and also on medication three times a day .
Isa is currently weighing 25 kilos and has become far too heavy for me to lift him. Going to hospital appointments is difficult as I do not have a wheelchair accessible vehicle.
It has come to a stage where I have done damage to my left shoulder, which has left me living in chronic pain making my every day routines more difficult, as I have to pick up the wheelchair and put it into the boot of my car and pick Isa up and put him in the car seat .
For the safety of my son and myself, I need to purchase a wheelchair accessible vehicle as soon as possible with a wheelchair accessible customised family vehicle my husband, children and I will be able to travel in one car as a family, making it easier to take him to appointments and regular outings.
Isa's siblings Jibreel, Zayne and Aaliyah have also been affected by this situation as we can not have normal family outings. Most of the time we have to be home for his feeds and medications and when he is unewell. Physically and emotionally, this has been a very hard journey for all of us and any kind of help big or small would be a relief to our family.
We need the support of our local community any contribution is greatly appreciated.
Organizer
Iman Haidar
Organizer
Logan Central, QLD