Help for Bex's Medical Bills
Donativo protegido
Hi :)
I'm Bex & after struggling with my health for over 10years I've recently been diagnosed with 3 rare, chronic conditions that have completely turned my life upside down. (Postural Tachycardia Syndrome / Ehlers-Danlos Syndrome / Mast Cell Activation Syndrome). I've gone from being a normal 27yr old studying to become a midwife, to being housebound since the beginning of 2015. You can read more about my conditions & my story on my blog www.beingbex.com.
My life now consists of multiple hospital tests and appointments with doctors, but due to the nature of my conditions there are so few specialists who know about these disorders, that the wait on the NHS for even an initial consult (let alone treatment etc) is anything from 9months to 1year! I have to see a combination of: Cardiologists, Rheumatologists, Pain management specialists, Neurology (to test whether I may also have some other conditions, due to MS & Brain tumours running in the family history), Allergy Specialists, Immunotherapists and Neuro-Gastroenterologists.
Both my family & I cannot cope with my daily suffering, which includes severe pain all over my body (on a daily scale of 12 out of 10...sometimes increasing by evening), gastro problems, constant nausea, heart palpations (my heart can jump from 70bpm to between 120-186bpm just by standing up!), numbness & shooting pains in my limbs/hands/feet, tremors, joint pain, headaches, & from 3weeks ago I have also started to pass out daily (most days I faint 10x a day or more), which is dangerous because I can (& have) injure(d) myself quite easily due to my conditions.
My family have chosen to now seek help from the Private Healthcare Sector (despite not having private health insurance) as I need immediate help from specialists, especially as I cannot take any pain relief for my conditions, and I cannot be started on the proper medication for these conditions until I have seen specific consultants & had a multitude of tests! These appointments are extremely costly, each 'initial' consultation costs anything from £220 to £300, not including if I need tests done privately which can cost thousands. My family also have to pay an average of £80-100 for cab fare for each appt as I am not well enough to take public transport & the specialists are all an hour or more away from where we live. We are trying to have tests done on the NHS but again the wait is months.
I have set up this 'GoFundMe' because I hate to see the strain that my health and medical needs are putting on my family & their finances. My family have suddenly gone from being parents of an independent adult who had her own flat & career, to being 'carers' of their sick child who cannot even walk to the toilet by herself on some days, so to have money struggles added on top is extremely hard.
Literally every penny helps, I'm not the type of person who asks for help, but for the sake of my parents and grandmother who are trying to fund for me to receive the right care and treatment, I am asking for some help towards my medical expenses.
Thank you,
Love,
Bex x
I'm Bex & after struggling with my health for over 10years I've recently been diagnosed with 3 rare, chronic conditions that have completely turned my life upside down. (Postural Tachycardia Syndrome / Ehlers-Danlos Syndrome / Mast Cell Activation Syndrome). I've gone from being a normal 27yr old studying to become a midwife, to being housebound since the beginning of 2015. You can read more about my conditions & my story on my blog www.beingbex.com.
My life now consists of multiple hospital tests and appointments with doctors, but due to the nature of my conditions there are so few specialists who know about these disorders, that the wait on the NHS for even an initial consult (let alone treatment etc) is anything from 9months to 1year! I have to see a combination of: Cardiologists, Rheumatologists, Pain management specialists, Neurology (to test whether I may also have some other conditions, due to MS & Brain tumours running in the family history), Allergy Specialists, Immunotherapists and Neuro-Gastroenterologists.
Both my family & I cannot cope with my daily suffering, which includes severe pain all over my body (on a daily scale of 12 out of 10...sometimes increasing by evening), gastro problems, constant nausea, heart palpations (my heart can jump from 70bpm to between 120-186bpm just by standing up!), numbness & shooting pains in my limbs/hands/feet, tremors, joint pain, headaches, & from 3weeks ago I have also started to pass out daily (most days I faint 10x a day or more), which is dangerous because I can (& have) injure(d) myself quite easily due to my conditions.
My family have chosen to now seek help from the Private Healthcare Sector (despite not having private health insurance) as I need immediate help from specialists, especially as I cannot take any pain relief for my conditions, and I cannot be started on the proper medication for these conditions until I have seen specific consultants & had a multitude of tests! These appointments are extremely costly, each 'initial' consultation costs anything from £220 to £300, not including if I need tests done privately which can cost thousands. My family also have to pay an average of £80-100 for cab fare for each appt as I am not well enough to take public transport & the specialists are all an hour or more away from where we live. We are trying to have tests done on the NHS but again the wait is months.
I have set up this 'GoFundMe' because I hate to see the strain that my health and medical needs are putting on my family & their finances. My family have suddenly gone from being parents of an independent adult who had her own flat & career, to being 'carers' of their sick child who cannot even walk to the toilet by herself on some days, so to have money struggles added on top is extremely hard.
Literally every penny helps, I'm not the type of person who asks for help, but for the sake of my parents and grandmother who are trying to fund for me to receive the right care and treatment, I am asking for some help towards my medical expenses.
Thank you,
Love,
Bex x
Organizador
Bex Chee Wei Wong
Organizador